headerphoto

Symptoms

These seem to vary wildly from person to person, which makes a firm diagnosis so difficult

Dizziness / spaced out / detached / unreal
This was with me constantly for the first few months, but passed. It was almost

like intoxication, but at the same time not a pleasant feeling at all. Looking back I believe it was the main symptom of a viral infection which left the post viral fatigue behind

Malaise
A feeling that something is not right. This has been present constantly and only began to become less intense after about 2 years. It varied from feeling off or not myself to feeling that something is seriously wrong and that I should be in hospital. I have tried very hard but without much success to describe this feeling both to doctors and to my own family. It is a vague, weary malaise quite similar to being hungover but at the same time like nothing I have ever experienced. Sometimes I would describe it as though my head and shoulders are heavy, almost as if i'm wearing a hat weighing 20 kilograms"

Internal Tremors
A strange feeling throughout my body, it started about 1 month into the illness and initially I percieved it in my chest as a nervous / adrenaline / butterflies in the stomach type feeling. It progressed into a feeling throughout my body more like a vibration or trembling. I could say it was like being connected to a low voltage battery. Sometimes when I lie still it felt as though my teeth are chattering. It was a lot worse at nights when I was trying to get to sleep. This lasted the longest of my symptoms and is still present now after 3 years, although barely noticable now.

Nausea
Mainly in a morning

Aches and Pains
Upper and lower back, sides, across the chest and my neck

Treatment

Comments on this page

JAMES
Thu Apr 17 09:27:28 BST 2014
Will I have to say thanks to dr sakura from bring my ex lover back to me…he is so good to me since I met he, I did thought that he can bring my lover back, a friend of my called Josephine from Canada gave me his contact telling me that the spell caster helped her to get her ex back and her children I did believe it and she explained everything to me about the dr, that he dosent charge at all but you have to provide only the things that will be use in casting of the spell which I emailed him and he told me that is the bus-stop of my problem and I believed him without doubting his work so he told me that i have to provide the requirements and which I provided and between an twinkle of my eyes m y ex called me and ask me that we should have a date and which I went and he ask my hand back in our relationship..i am so happy today for the marvelous work dr sakura has done in my life I don’t have anything to give him but to say thanks only ….EMAILED HIM TODAY AT DR.SAKURASPELLHOME@OUTLOOK.COM mobile phone number is +2348125943237 my email is Leila.stephaine@gmail.com while my friend email is josepatrich@gmail.com you can email if there is any question about my post For Attraction Spells Commitment Spells Crush Spells Enchanting Spells Erotic Spells Friendship Spells Jealousy Spells Marriage Spells Obsession Spells Phone Spells Relationship Spells Sexual Spells Trust Spells Truth Spells Cure Spells Death Spells Diet Spells Healing Spells Health Spells Hurt Spells Immortality Spells Resurrection Spells Strength Spells Banishing Spells Binding Spells Conjuring Spells Contact Spells Defense Spells Dream Spells Enchantment Spells Energy Spells Force Spells Nightmare Spells Peace Spells Power Spells Protection Spells Summon Spells Warding Off Spells Flying Spells Illusion Spells Invisibility Spells Levitating Spells Mindreading Spells Telekinetic Spells Teleportation Spells Time Spells Career Spells Fortune Spells Job Spells Money Spells Success Spells Attractive Spells Body Spells Diet Spells Glamour Spells Hair Spells Strength Spells Bad Luck Spells Good Luck Spells Misfortune Spells Wish Spells Baby Spells Career Spells Confidence Spells Fertility Spells Forgetful Spells Fortune Spells Growing Spells Job Spells Memory Spells Money Spells Revenge Spells Success Spells Truth Spells Wish Spells Fire Spells Rain Storm Spells Snow Storm Spells Sun Spells Wind Spells Dragon Spells Fairy Spells Mermaid Spells Vampire Spells Were-Wolf Spells Email dr.sakuraspellhome@hotmail.com and dr.sakurasolutionalter@gmail.com
lord micheal
Thu Apr 17 09:26:59 BST 2014
All glory is given to the most great dr called sakura…how which I knew him before now I would have been suffering anymore….he has helped many people in this world and he has done my today, I own him a great testimony which I am doing here today email dr sakura on DR.SAKURASPELLHOME@OUTLOOK.COM and also on DR.SAKURASOLUTIONALTER@GMAIL.COM mobile phone number is +2348125943237 for helped also thanks For Attraction Spells Commitment Spells Crush Spells Enchanting Spells Erotic Spells Friendship Spells Jealousy Spells Marriage Spells Obsession Spells Phone Spells Relationship Spells Sexual Spells Trust Spells Truth Spells Cure Spells Death Spells Diet Spells Healing Spells Health Spells Hurt Spells Immortality Spells Resurrection Spells Strength Spells Banishing Spells Binding Spells Conjuring Spells Contact Spells Defense Spells Dream Spells Enchantment Spells Energy Spells Force Spells Nightmare Spells Peace Spells Power Spells Protection Spells Summon Spells Warding Off Spells Flying Spells Illusion Spells Invisibility Spells Levitating Spells Mindreading Spells Telekinetic Spells Teleportation Spells Time Spells Career Spells Fortune Spells Job Spells Money Spells Success Spells Attractive Spells Body Spells Diet Spells Glamour Spells Hair Spells Strength Spells Bad Luck Spells Good Luck Spells Misfortune Spells Wish Spells Baby Spells Career Spells Confidence Spells Fertility Spells Forgetful Spells Fortune Spells Growing Spells Job Spells Memory Spells Money Spells Revenge Spells Success Spells Truth Spells Wish Spells Fire Spells Rain Storm Spells Snow Storm Spells Sun Spells Wind Spells Dragon Spells Fairy Spells Mermaid Spells Vampire Spells Were-Wolf Spells Email dr.sakuraspellhome@hotmail.com and dr.sakurasolutionalter@gmail.com
Phil Scott
Fri Apr 11 23:37:58 BST 2014
Hello friends, an awesome and amazing testimony about a Great spell caster i really love to share. My name is Phil Scott from the United States. Getting my wife back is what i least expected and could never imagine. I and my wife have been married for five years and we have been living happily but all of a sudden she changed completely and turned away from me and i never knew what was going on, i tried to ask her but she refused to tell me what the problem is, and as time went on she sought for a divorce. I was so worried and confused, and i did all my possible best to get her back but it wasn't easy, i thought all hope was lost, and during my search for a way out, a friend of mine who had similar problem told me about a great spell caster called Great Eziza who helped him get back his wife also. I never believe in spell casting in my entire life or a magic because i never thought it will work but i tried to give this man a chance and to my greatest surprise, He cast a spell on me but today we are back together into a lovely home with three beautiful kids. We are happy together again and i am using this opportunity to tell anyone passing similar situation to contact him on ezizatempleofsolution@gmail. com and you will be the next to tell a new testimony.
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Annie
Sun Feb 16 11:58:30 GMT 2014
Hi guys..i m also suffering from the same situations like u..i had mild chest infection and also depression..i got treatment for the infection and now my blood report is normal..i cant take normal breath and feel very tired all the time and also my legs pain and feel them heavier.i also have acidity problem...sometimes i really feel terrible and cant focus on my work..i told to my dr. About the breathing problem but he said its normal and bcz of depression i feel it.. :( plz help me guys
ROGERS
Sat Feb 15 20:52:46 GMT 2014
Thanks Dr.Zabaza for your kind help, You have done what other spell casters could not do for me i am so very happy for my lost joy which you have just recovered for me within 48 hours after you casted the spell on my ex whom i thought would never come back to me. I am so grateful to you for you are really powerful and genuine and i will always continue to share this testimony on the internet till the whole world know about you. Here is his email if you are also in need of his help zabaza.logan@yahoo.com or call +2348182620374
Barbara Adams
Wed Jan 15 15:32:38 GMT 2014
I am Miss Barbara Adams.,From united states of America.I will start by saying to all that have experience heart break and also cant do with out there lover should please stop here and read up my story, So as you will know how to go solving or getting your ex back from this spell caster..AND AGAIN I WILL WANT TO ALSO TELL ALL THAT THIS SPELL CASTER I WILL WANT TO TELL THE WHOLE WORLD ABOUT IS HARMLESS AND DO NOT HAVE ANY SIDE EFFECT, BUT TO RESTORE AND GIVE YOU BACK WHAT YOU DESERVE, COS WHEN I MEET WITH THIS SPELL CASTER THAT WAS INTRODUCED TO ME BY THE WIFE OF MY BOSS IN MY WORKING PLACE, HE MADE IT CLEAR THAT HE CAN CAST SPELL ON SO MANY OTHER PROBLEMS EXCEPT IN GETTING YOUR EX OR MAKING YOUR LOVER TO LOVE YOU MORE THAT WILL SUITE YOU. Last year December, My lover was cheating on me and was not also give me the attention that a man should give to a woman,And really that was troubling my mind and tearing my heart apart to the extent that i was not concentrating in the office the way i use to before the break up by my lover.And before that incident,I always see how my boss use to love his wife so much. I was binging to think that i was not doing the right thing to him that will make him love me forever,So i really gathered my courage and went to my boss wife office to ask her the secret that made her husband love her so dearly,In the first place she refused in telling me,She asked me why i am asking her such a question,That if is it not normal for every man to love his wife.I told her the reason that made me ask her about this question,That my lover started cheating on me lately,When i knelt down before her for her to see my seriousness in this issue that i went to ask her,She opened up to me by telling me that i should not tell anybody about what she want to tell me,The wife to my boss started to say to me that she used a very powerful spell on his husband to love her,And the spell that she used is harmless, But the spell is just to make him love her and never to look for any other woman except her. I QUICKLY ASK HER HOW DID SHE GET TO KNOW THIS GREAT,POWER,DR OLOKUN AND PERFECT WORK SPELL CASTER,she said that a friend of hers also introduce her to him. Then i also ask her how i can meet with this spell caster.SHE SAID EVERYTHING TO ME,THAT THE NAME OF THIS SPELL CASTER IS Dr. OLOKUN TEMPLE.My next question to her was how can i get this wonderful spell caster,She said she is going to give me the email of the spell caster for me to contact him for my problem,Really she gave to me this spell caster email and i contacted him and explained all to him,And after every thing that needed to be done by the spell caster, In the next two days, My lover that hated me so much came to house begging for forgiveness and i was so glad that i have finally gotten my heart desire..I was so grateful to this spell caster for what he has done for my life.. So i made a promise to him that i will always continue telling the world about his wonderful work towards me and also to other that came to you before and also the people that will also get to you from my story that i narrated online now..I will want to say to the entire world that you should not cry over noting again, That there is a great man that has been helping individuals to restore there Joy and smile in there faces !! The direct email to get this man is : drolokuntemple@gmail.com ,This is what i want to tell you all out there,That is thinking that all hope is lost ok..Thanks
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Lily
Fri Oct 18 23:50:05 BST 2013
I've had flu & colds before, lasted a week or more, but when I was better -I was better! Not this time. It's weird this time. Over 3 weeks ago I suddenly got tight chest, horrible cough, burning throat, followed by what I thought were 'cold' symptoms. The cough was the worst thing. At one point I thought I had pneumonia, but that has now eased up, more or less gone entirely, and I felt I was much better....except I'm not. When I go to bed I've no control over how long I sleep...can't wake up. Then when I do I feel ok. But after getting up feel wretched, and no energy all day. SO tired all the time. My appetite has come back and I'm eating healthy, but I get crazy growling stomach even only 2 hours after eating! Like I need to eat all over again! Sometimes this intense hunger wakes me up. I am having drenching night sweats. Go too hot/too cold in the day. but the worst thing is the terrible weariness that won't let up. I am normally a very fit person walking miles each day. Now I can barely manage a little walk. Is this ever going to get better? Could this be post viral fatigue?
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Kevin
Thu Sep 13 14:39:21 BST 2012
Hi SH I'm sorry to hear your having such a tough time, but it's great that you've met other sufferers. I'm sure talking face to face with them will help no end. As for managing it ****** to that we will get better and hopefully fully recover. It will be a long journey but we will get there the important thing is to remain positive get the support we need and remember to rest and pace and keep trying treatment even ones that failed in the past, because as we improve the illness changes so we must change with it. We also need to give ourselves permission to be ill and not over do things just because we feel we should. I kept trying to power through this and I just made things worse. It was only when I stopped pushing myself that I got out of the boom and bust cycle and began to really recover. I just went for a longer walk today and overdid it proving I still have a far way to go, but we will get there in the end. However your right it is frustrating not knowing how long it'll take. We just have to hang in there
SH
Wed Aug 29 15:29:30 BST 2012
It is reassuring to know that others are going through the same thing. Since a virus in early 2011 where I was wiped out for over week I`ve been getting repeated chest infections and extreme tiredness, where I feel shaky and have what I can only describe as 'pulsing' in my legs- watching them twitch is also very odd. I've had constant pins and needles for over a year. Sometimes I have short bursts of energy but then I crash. I also get bouts of being flushed with a bit of a temperature and glossy eyes- of that makes sense. I did cry rather a lot on the doctor who said I just had to try and manage it. The challenge is not knowing how long it will last and feeling like you`re not doing your job and carrying out responsibilities to the best of your abilities. I have to just listen to my body and not worry so much about how others perceive it. After being so active, it is discouraging to feel so drained- but am trying to use my time of being a bit more of a hermit productively in a different way- like reading and writing letters of praying for other people takes the focus off myself. It doesn`t have to be wasted time. I have recently met many people who are going through long term fatigue. Some are recovered and others have learned to manage it which I`ve found encouraging.
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Kevin
Thu Jun 14 23:25:50 BST 2012
Hi Claire mccoll Why Don't you or your Daughter register and talk it over with the other members. If we know more we could give better advice. It sounds like your Daughter is going through boom and bust, relapsing all the time and not actually recovering. The sooner she get good advice and treatment the quicker she will recover. I hope to hear from you soon
Claire mccoll
Tue Jun 12 22:44:03 BST 2012
It is so great to read the helpful info on this website and to know there are other sufferers too . My daughter has pvfs and has had it off and on for 8 months . It's so hard and frustrating to watch her feeling utterly exauggsted and sick unable to eat and wanting to sleep all the time . Just feel the dr s are no help abdcyou are left to get on with it .
Jason G
Sat Jun 9 08:32:02 BST 2012
I have experienced every single one of these symptoms. PLEASE read what I have to say below, and re-post and publicize as much as you can. I guarantee it will provide you with at least some degree of energy, if not all of your energy back. I am not some nutjob conspiracy theorist - I just understand the pain you are all in right now and want to help as best as I can. READ now please, or regret: My name is Jason - I am a recent graduate of Columbia University. From August 2011 until May 2012 I suffered from the debilitating symptoms of Chronic Fatigue Syndrome. I experienced dizziness, heaviness, brain fog, joint pain, the inability to walk, along with a host of various other symptoms. These symptoms emerged after bouts with mononucleosis and pneumonia over the past year. Towards the end of April as my symptoms worsened, I stumbled across recent research being done regarding the connection between gluten intolerance and CFS (please see links posted on my page). Upon removing gluten from my diet completely, my symptoms completely resolved within 1 week. I have not experienced a single symptom since. Dr. Tabous Khabani, lead doctor at the Beth Israel Celiac Center in Massachusetts, confirmed my diagnosis as correct. He said that every single week he sees patients who have been misdiagnosed as having CFS and Fibro when really what they have is a gluten intolerance (which does NOT always mean Celiac Disease). Gluten intolerance is currently the most undiagnosed medical condition in the world. Dr. Peter Green of Columbia University posits that every single person has some degree of gluten intolerance. Because of the pain I felt then and the relief I feel now, I've made it my mission to ask this crucial - absolutely crucial - question, to every person I can find who currently suffers from CFS: have you ever considered a gluten intolerance as the cause of your health problems? If not, I URGE you to remove gluten ENTIRELY from your diet for one week. This requires serious attention to all food products you consume. Gluten is a protein found not only in bread, pasta, and cookies, but in many salad dressings, cheeses, processed meats etc. To be extra vigilant, if you decide to do this, I would also remove casein - a protein found in all dairy products - from your diet as well for one week, as that can also contribute to CFS symptoms. If a crumb of bread or any gluten-containing product were to slip into your diet during such a trial, you would need to start it over again. Those who have a gluten intolerance are as sensitive to a bread crumb as they are to ten loaves of bread. Also, if you have experienced any chronic gastrointestinal symptoms, bloating, depression, anxiety, skin problems, tooth enamel deficiencies - there is a very good chance that gluten intolerance is causing those issues and your CFS. I hope you do not find this message to be any bit invasive or imposing. I am not some nutjob conspiracy theorist. I just recognize the pain that you are likely going through currently, and want to make sure that you have considered all possible causes of your discomfort. I went to 5 of the best doctors in NYC - not one of them thought to check me for a gluten intolerance (which is NOT always celiac disease) If you do decide to go gluten-free for a week, I would be highly interested in hearing how you feel afterward. I guarantee that you will at least feel some increase in energy levels, as nearly every person who removes gluten from their diet - even those not intolerant to gluten - has echoed this sentiment. It can't hurt - there is only an upside to removing gluten from your diet. You can e-mail me at celiacnotcfs@gmail.com. Regardless of whether you decide to give this a try, stay strong! Your challenges are daunting, but they necessitate a uniquely iron will, one stronger and more powerfully admirable than that of most. Thank you. Best of luck, Jason
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Kevin
Tue May 8 19:26:33 BST 2012
Hi Violeta I hope you are feeling better. this is a horrible illness and you will have a rough road ahead but things will get better. Please research as much as you can. Start in the resource section on the forum and you could join and post on the forum for more help
Violeta
Sat May 5 19:56:59 BST 2012
Hi everyone, i was on vacation and i got sick there It was high fever sore throat and i was coughing a lot .i was diagnosed with throat infection plus bronchitis .it was horrible time i took antibiotics for 3days .That medication wich i received from hospital did not change my condition i was in panic i went back to Toronto.As soon as i arived i went straight to the hospital They checked blood for some viruses and all was negative. Blood test was normal but i felt like crap ,so they gave me another antibiotic for 7 days and i started to feel better . no more fever,couhg but still i feel somthing wrong with me .i went to see my doctor i explained all my symptoms (most symptoms like most of you had)so my doctor said its post viral invection sindrom .i was shoked .she said it will take a long time to recover. I was crying cuz i didnt know how to live now. Its been 4weeks and i still feel bad and depresed .i cant focus on anything, i think im getting crazy .I wish to all of you speed recovery.
Adria
Fri Apr 20 21:07:33 BST 2012
So glad to have found this site. I've had flu and have been Ill for the last two months. My kids and husband have been ill too but I guess my husband and I have had it worse. I get up everyday wanting to get my kids ready to school and do the Normal things but at the moment I feel I am not in control of my body. I am a dance teacher and as you can imagine I have no energy to dance. My brain is telling me, " get up and go" but the body just won't. I dread think this will take years to improve! Good luck to you all!
Tina
Sun Apr 15 21:40:22 BST 2012
Kez, I'm sorry to hear about your terrible experience. I too have pvf and have been seeing a nutritionist for 7 months now. I haven't felt any different with the supplements I've been given. Could you reccomend your nutritionist to me I would like to find someone with experience in treating this type of fatigue, I've been fatigued since January 2010 after 1 month of swollen glands. I look forward to hearing from you and wish everyone on this board good health and speedy recoveries.
Kez
Wed Apr 11 21:04:25 BST 2012
There is hope !!! I was diagnosed with PVFS after swine flu, septacemia and respiritory failure which resulted in a near death bed experience a year ago. In the year the has followed i too have experienced fatigue, brain fog, aches pains and feeling like I have flu all the time and been unable to control my body temperature- all medical test have returned normal !! I was then recommended to see a nutritionalist - i now follow a restrictive but healthy diet and have my supplements changed each month- at the moment the supplements i take fight viral illness - the acheyness and joint pain has now gone and my three hour energy 'window' a day has increased to 6 hours - i still have to rest loads and i am still fatigued but there I am improving slowly. The lady I see has over thirty years experience in nutrition and conducts her assessment through applied Kineseology and has been the only person i have met to say . your body is scrambled and carrying virus's but there is hope for recovery......
Catriona
Wed Mar 28 13:32:31 UTC 2012
Hi everyone, I was so glad to find this site and read about other's experiences. It is reassuring that I wasn't going mad! I am a primary school teacher and I got a virus 14 months ago. I have never been fully right since. I have had numerous blood tests done, an MRI scan, chest X-ray and an abdomen scan done and yes like many others 'all normal'! I have been diagnosed with PVFS. Although I was able to return to work after a period of time off sick last year, I was unable to go to the gym or do anything socially for about 5 months. I was very active before this and did a lot of exercise especially running. I rested over the summer holidays (6 weeks for teachers) and started to feel about 90% better. Since going back to work last Sept (2011) I have continued working but have had to take a lot of sick days due to numerous different bugs. During this time, I was able to continue less strenuous exercise 3 times a week and go out socially every now and then. In January this year, I got another horrendous virus which forced me to take time off work. Unfortunately, this virus has made me relapse and I am still off work nearly 3 months on. My symptoms are far more severe this time around which is very disappointing as I felt I was getting over this. On my worst days, I have felt like my body was just completely shutting down and I was dying. I have all of the symptoms listed here on this site but they vary in severity from day to day, week to week and often hour to hour. The symptom I find most distressing is the feeling of being 'spaced out and not really me' as this makes me feel really anxious and not in control. I too, like others have lost some confidence going outside as I have been in many situations where I have come over 'all funny' and weak and have been on my own and far from my flat which is so frightening. To say something positive, I am improving very, very slowly - baby steps really but definitely improving. I have cut out sugar and coffee and refined foods and am trying to eat much healthier so hopefully this will help. I also keep a diary and this does help to see what progress I am making. I don't know when I will be able to go back to work and I am always frightened that in the future this will return due to my stressful working environment. Perhaps this is the reason I have relapsed again. I agree with other people when they say how irritating it is when people say that 'you look good' as if you are making it up! No-one can possibly understand what it feels like unless they have had it. Anyway, I am wishing you all a speedy recovery. It is so hard to remain positive but I am trying my best. Good luck to you all :)
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S
Fri Mar 23 13:43:47 UTC 2012
such a relief to read this. you think you're going mad at first, when the blood tests turn up clear but you know you're ill. have had it for a month now and it really sucks. i've missed so much school and i just want to get back to my usual routine. doctors are so reluctant admit defeat, and say that it is PVFS and there isn't much to be done about it. i'm sure it is PVFS though, having had a virus and cold not long before it and my symptoms are the ones you've all described. It's the most annoying thing ever, it just goes round and round in circles and there's no escape from it...really bad nausea, the worst headaches, swollen throat in the morning. tiredness, weakness and dizziness most of the day. sleep does nothing to make you feel any less tired - if you can eventually get to sleep at all that is! also have a lack of concerntration and memory isn't great. however, sometimes i feel absolutely fine which is the weirdest thing! trouble is that no-one understands what it is you have and there's not much you can do about it, but i'm glad to hear there are others with it who are just as frustrated as me!
tracy
Wed Mar 21 20:36:56 UTC 2012
As a nurse, I can tell you that if a doctor will tell you that you have CFS if they cant figure anything else out. It's their ego. I would never take that diagnosis. Most doctors dont want to look into fatigue, since it has so many causes. And if you are a woman, they love to diagnose depression and anxiety. If I ever got the CFS diagnosis, I would surely get a 2nd and 3rd opinion.
Lynne
Tue Mar 20 23:49:12 UTC 2012
So fed up!, not depressed though. Which is a good thing considering 2 CT scans and a lymph node biopsy last year were pointing towards hodgkins lymphoma. Good news is I don't have that. Bad news is I have CFS according to my GP. What really annoys me is that when you ask what CFS is they never give you a straight answer. I have always been a go-getter but recently my go-get just got up and went!.....I have chronic nausea every day, all day and night too, along with bone and joint pain, chronic tiredness where I even struggle to turn the page of a book my body is so tired, night sweats and swollen lymph nodes. Acne and dry scalp and hands......aaaarghh when will it stop, this has now been over a year. It is like the worst hangover ever but unfortunately it never goes away!. Chronic Fatigue, Post Viral Fatigue or ME whatever you want to call it, it is just Rubbish how we are stuck in a what I feel I can only call a one size fits all diagnosis for something a doctor hasn't managed to find!.
helena
Mon Mar 19 16:56:48 UTC 2012
I thought i was going mad, or it was just me that kept getting repetitive illnesses... just when i start to feel well again and good, i get struck down soon after. Am going to tell my GP that i think i have PVF and see what she says. Wish me luck.
Ankur Bhageria
Sat Mar 17 12:35:30 UTC 2012
@James What medications, precautions and treatment are you taking for this? I am currently taking Vitamin D supplements and my GP has put me on anti anxiety and SSRI antidepressants. Blood, kidney, thyroid, liver, vitamin, head CT (contrast) all turned out normal. I wonder how long these symptoms will last. I am frustrated...
JEANNIE
Wed Mar 14 00:42:49 UTC 2012
OMG! I AM SO HAPPY TO HAVE FOUND THIS SITE. I HAVE BEEN HAVING THESE SAME SENSATIONS FOR 1 YR. I WAS PLACED ON LISIOPRIL (BLOOD PRESSURE MED) LOVED IT SEEMED TO BE MY MIRACLE BUT AFTER 60 DAYS ON IT I GOT EXTREMLY SICK VOMITING & DIAREAH FOR 5 WEEKS STRAIGHT. DOCTOR RAN EVERY TEST TO MANKIND ON ME STOOL SPECIMENS OUT THE WAZOO.. AND MY BLLOD WORK CAME BACK HIGH POTASSIUM 6.7 AND AT 7 UR HOSPITALIZED SHE TOLD ME. WELL THEY PULLED NE OFF AND CHANGED ME TO NORVASC AND WITHIN 48 HRS ALL STYMTOMS STOPPED UNREAL....BUT....THEN CAME THESE WEIRD SENSATIONS LIKE ASIF SOMEONE PUT A WATER HOSE IN THE END OF MY TOE AND TURNED IT ON AND SLOWLY MY BODY WAS FILLINUP FROM MY FEET TO MY HEAD....LITTLE TINGLING SENSATION AND THEN GONE WEIRD!!!! BUT IT FREAKS MNE OUT AND I WANNA KNOW WHY. MAINLY AT NITE BUT HAS OCCURED IN MORNING. I FEEL LIKE I CANT GET A DEEP BREATH AT THE TIME AND WHEN IT LEAVES I FEEL TIRED. WISH I KNEW WHAT IT WAS
bunmi
Tue Mar 13 13:19:26 UTC 2012
Am so very interested in d solution to all of this feelings.Life can be really unpleasant when one is down with this fatigue
James
Sun Mar 11 20:02:04 UTC 2012
Ankur Bhageria your description is exactly what happens to me during a day its good to hear im not alone
Ankur Bhageria
Thu Mar 1 16:09:23 UTC 2012
I am experiencing exactly similar symptoms right now. Had a viral fever a month back. Fever subsided in a week but now these are my symptoms: Morning: Feel drowsy and sleep on waking up. Calm in the morning Afternoon: Head feels heavy in the back (occipital region), feel like heavily drunk/hungover, severe loss of concentration and sensitivity to light. Evening: Symptoms worsen and I feel like something is severly wrong in my head, begin to panic. Night: Sleep early like 10 PM or so to avoid any further panic and exertion.
Rob J
Tue Feb 28 13:48:49 UTC 2012
Had P.falciparum malaria 2011. Had to treat myself with quinine. It worked but since getting back home I feel off now and again. Went to hospital and had blood tests, all came back fine with no nasty bugs or viruses. I still get a heavy/pressure in my head and occasionaly feel a bit nausiated. Strang thing is most of this occurs at night. Drs have no idea and put it down to a virus with soft neurological symptoms. Good to know I'm not going mad!
Nathan
Sun Feb 26 13:56:13 UTC 2012
I've got the same thing but did it affect your sense on feeling?
Derrick
Fri Feb 24 02:04:39 UTC 2012
Wow Paul's story is literally identical to what happened to me. Everything from the symptoms to the timeline. Identical. Nice to know Im not alone.
Jacqui
Tue Feb 21 00:17:31 UTC 2012
Dont know if I have PVFS or not, but have been Ill for about 4 years now, with symptoms ranging from bad heads, pain in eye sockets, glands up in neck,earache,giddiness, feeling of being punched in stomach, etc,etc but never any infection or temperature?!have a job I love which I doubt will be there much longer, wonderful kids that have to look after themselves when I can't get out of bed, a new partner that I hardly have a relationship with,and my blood tests are 'normal, and my doc says there's nothing she can do.i used to be so full of life,positive and sociable, now feel like giving up...
Olivia
Wed Feb 15 16:53:53 UTC 2012
I'm 16 and have recently been suffering panic attacks. At first I thought there was something seriously wrong with me and I'd worked myself into such a state that I thought I was about to drop dead any second. After have blood tests and being told there was nothing 'medically' wrong I began to wonder what it could be. I found the NHS did nothing after my blood results were clear and didn't mention anything about a possible panic disorder. When I found this website it began to come clear to me as these were all my symptoms. I believe my illness has come about because of stressful situations within my home life and I realise that when I'm worried about it it causes my symptoms to reappear. It stopped me from going to school for 3 weeks and I struggled to get myself back into normal routine. I found myself attached to my mum because I only felt safe with her. Even now when I'm at school I often get feelings of anxiety and as if there's something seriously wrong with me. I've spoken to my teacher's and they've set up counseling that will hopefully help. The pressure of needing to do well in school also adds to my anxiety. I often feel like just dropping out of school and picking it up next year after having some time to relax and getting myself back to normal. The thing that worries me the most is the chest pains, I can't help but feel as if it's really in my heart. They gave me an ECG in hospital and said it was fine but I somehow refuse to believe it. I usually find everything's better when I'm focused on something else but even still it's impossible to think about anything else. I just pray I can get through this because I haven't felt myself in a long time and it would mean everything to me just to be happy again.
1
Tue Feb 14 21:45:00 UTC 2012
1
ROBIN
3/31/2010 9:10:57 AM
A couple of years ago I had some sort of PVFS which lasted perhaps 2 years before I sought non-NHS treatment. I had treatment from an ex-GP who used a mixture of kinesiology and homoeopathy to treat me. It was brilliant and worked.
Jayne
3/29/2010 7:05:34 PM
Wondering if this is what i have. About 2 years ago i must have contracted a virus - we were going on holiday to center parcs but it was all i could do to muster up the energy to prepare for the holiday - couldn;t do a thing whilst there! since then i have suffered with throat problems, chest infecitons, colds, and have recently had shingles. In the last 2 years i have had odd times when i have had energy, but most often i have none at all. I used to be very energetic and find it so depressing that these days i can't do anything without feeling constantly exhausted. I have a cold and cough at the moment and this has reduced me to spending my days on the sofa again - yesterday i tried helping my daughter paint her room but couldn't do it. Everything aches and even walking up the stairs today makes my legs ache! I would give anything for my old life back!
lesley
3/25/2010 9:06:42 AM
does anyone else keep going down with viruses i get one after the other cant seem to get out of this vicious circle please belinda let us know your outcome
Jayne
3/21/2010 10:18:41 PM
It is so good to find this site. I thought I was going insane. Doctor said I have PVFS after a weird respiratory virus. I had terrible breathing problems at first and asthma. Now after 4 months I have a tight band feeling across my chest all the time. Doctor said it is fatigue in the chest muscle walls - feels like I can't breathe properly and breathing is an effort. I've had it 4 months and it just won't go. I also have a deep wheeze/rumble in my chest when I breathe in, but no Doc's can hear it and say my chest is clear! Nothing seems to help - blood tests and chest x ray all normal. Doctor recommended Evening Primrose oil but not helping so far. Feeling very miserable as I'm thinking about it everytime I breathe!
Halle
3/16/2010 6:52:28 PM
@ Belinda, please please please post your full recovery story. I need to know there is light at the end of this dizzying tunnel!
Tim S
3/15/2010 5:59:41 PM
My sugar levels go up and down all day but I don't have hypoglycemia or diabetes. I 'crash' sometimes and can't do anything. Much of the rest of the time I have a general fatigue. If this describes your symtoms, you may have adrenal fatigue/adrenal exhaustion or even low DHEA hormone. / Check out my other comments in treatment (you can type in "control 'f'" on your keyboard to search a web page for any phrase such as 'tim s').
Cass
3/15/2010 2:57:45 AM
Join us in the forum. You can do so by clicking on the link above entitled "NEW Forum"....I think you'll find a lot of helpful information there.
Pauline
3/13/2010 11:44:00 AM
I could not believe what I was reading when I came across this site. It was like seeing all my syptoms are not in my head as some of the consultants I have seen keep telling me. I have had so many traumatic experiences with my health over twenty years or so and cannot get any help from the medical profession, other than pain magement, stress councelling, fybromayalgia courses. Not one of the medical avenues I have gone down has helped. I have tried accupucnture, chinese herbs medicine, spritual surgery, chiropractor healing, massage, cutting out certain foods all of whom want to take my money but when it does not work, are gone, it all costs so heavily. etc. etc. etc. I seem to have so many symptoms and now feel it has got to the point there is no return. I try so hard to ignore my symptoms but they are so bizare I dont know what to do any more. I only manage to work two days a week which I find is a terrible strain and nighon impossible for my health as I just go home and crash. I cannot get any financial help, my husband has been out of work because of the recession and we get no financial help, even though he has worked immensly hard all his life for over 40 years. I therefore can only assume that all my problems are stress related, so if there is anyone out there who can suggest how we rid our minds and body of the increasing amount of stress we face each day, I would much appreciate it, as there is absolutely no other answer.
Caroline
3/11/2010 9:32:31 PM
I found this site through googling "feeling like hungover and so glad to hear others understand. I have felt this way since a severe strep c throat infection. It's so frustrating to feel unfocussed and trembly despite being fit and eating healthily/exercising regularly...usually we look after our body and it looks after us, right?
Ivan
3/9/2010 3:13:38 PM
Really glad i came across this site thought all this was just in my mind these comments have helped me a lot never herd of this problem before also been to my dr not sure if she took me seriously cheers
Cate
3/8/2010 12:40:30 PM
I submitted an entry about a month ago and since then I have slowly improved. Wish progress was a little quicker though as I feel my life has gone up in smoke and wonder if I will ever cope again. My head is clearer and I feel as if I am beating the infection - at least my temperature is normal for more of the time. I am exhausted most of the time and my body feels as if it is quivering. Some days I feel a bit better and do more but pay for that with a day or more of exhaustion, but I am going to get there! I am keeping a diary again just so that I can see improvement. Very interested to read the submission from Alex about concerns from the medical profession that swine flu has longer term effects. A friend of mine went down with the initial illness as I did, suffering from severe headache, temperature and terrible tum, and she too suffered with it coming back for about 6 weeks. She is now feeling fine. I am hearing from lots of different people about friends with similar symptoms being ill with it weeks later - there is definitely a virus out there that is causing these problems. I have also been seeing a medical herbalist and the tincture she gave me immediately sorted out the stomach upset and nausea enabling me to eat. I had lost lots of weight, was grey in colour but now look more healthy - this is all good. She has also given me a lot of advice regarding diet and I am trying to eat really well. I am taking some comprehensive vitamin and mineral tablets, slow release vitamin C, pro biotics amongst other things. It takes a while to build your body back up. All the time my body is fighting the virus it is working really hard and depleting resources so I have to give it what it needs and rest.
Helen
3/6/2010 5:29:00 PM
Just thought I was getting over a severe chest infection - bronchitis & asthma ( not normally asthmatic) following course of antibiotics & inhalers. Returned to work last week ( i am a nurse) as feeling pressured following 10 days off . . . managed one day at work & have felt awful since!! Just as most of you guys describe . . . total exhaustion not relieved by sleep, dizziness, spaced out/disorientated feelings, nausea, headache, neckache, cold sore on lip & generally rough!! Spoke to GP yesterday who said sounded like 'post-viral syndrome' & advised to rest as much as possible. Now pressure from work about when am I returning - I haven't a clue tho & said Im just taking day at a time . . . How do others cope with time off work & sick certificates etc. Do you take week at a time? It's so difficult as I haven't got a clue how I'll feel next week!! Any advice from anyone please??
SJL
3/2/2010 3:50:03 AM
I would go crazy if it weren't for all of the shared experiences posted on this site and others like them by fellow sufferers. After a 2 month long bad period with a throat/chest infection I developed so many of the symptoms that have been described. Because I know it helps others to hear similar experiences I'll list the ones I can remember. Initially I had: aching all over my body and rib area, flu-like sensitivity on the skin, soreness from lying on skin in one position for too long, fever-like chills for almost 2 months that would worsen throughout the day, decreased immunity resulting in secondary infections, arthritic aching without swelling in hands, feet, hips, and knees, extreme fatigue after doing basic things like household chores (although I forced myself to continue light exercise for an hour each day most days, which I believe helped me to recover faster), tingling all over my body that changed from moment to moment and throughout the day (this is a symptom that continues still every day, and was the first to set in), buzzing feelings, twitching all over my body (which started after I received a flu shot while still ill with post-viral), creepy-crawley feelings under the skin (especially as tingling set in and in the face), wacky white blood cell counts that would go up and down, chest pain and even wheezing but without fluid in the chest, initially only I had visual 'after effects' where I'd see a repetition of a bright light for several seconds when I moved my eyes, nausea and a spaced out feeling with the worst days, white hot muscle cramping up and down my back, a tremor-like feeling all over my body that was like the butterflies in the stomach but all over, a stiff feeling in my face after talking and feeling like facial muscles were tense, and cold sweats. These symptoms were often such that they would peak at a certain point in the day, such as after work or exercise, and they developed and waned at different stages in the illness. The first awful 2 months were July and August. In September I decided to return to my normal running routine, increasing excercise to 7 miles of jogging/day (even when it was bad I was still able to jog about 3 miles most days very slowly). This actually precipitated great improvement in my symptoms, however I tend to have relapses after nights without enough sleep and exposure to infections, or new infections. I had just a cold a few weeks ago, and am still finding post-viral symptoms increasing again, though not nearly as bad as last time. The worst part about this illness is the sense of isolation, as doctors in the southern USA do not generally know about this illness, and it feels like you are the only one with these ridiculous symptoms that come and go minute by minute. I fight everyday not to let the anxiety take over, and not to become a hypochondriac, but it is difficult. I have decided that even though I have days and weeks of relapse, it is better to focus on the long range progressive improvements. I hope for all of us that the medical industry becomes more aware of this condition.
lesley
2/26/2010 9:58:27 AM
i have been suffering from vertigo for 6 years now which they believe is stress related then about 2 years ago after a major op i started going down with viral infections. i have now been told i have PVS and since september have had 4 viruses i cannot seem to stop pic king them up even though i hardly go anywhere to get them trouble is it is really worrying me now because it makes the vertigo dizziness worse but i have been told the more i worry the worse it will ge . i am interested in belindas comment and would like to know what she did to try to help the symptoms
Paul
2/25/2010 4:42:15 AM
Great website - very reassuring. I had swine flu in October and November last year which knocked the stuffing out of me. I felt I was over it in December and had a holiday in Bali before a wonderful Christmas with my family. Then in the first week of January I began to feel really bad: nausea in the morning, loss of appetite, dizziness, blurred vision, aches and pain, unstable legs and complete exhaustion. Two doctors have told me it's post-viral fatigue and there's not really any treatment other than rest and not too much exercise. But I've found that liquid multivitamin helps a bit. Hey Josh (5 Feb) I had similar thoughts, which are completely out of character with me. Hang in their bud - you'll get through it.
Wallace
2/15/2010 1:37:17 PM
I have a really interesting & rewarding career and have a very understanding boss but now that I have phoned it 5 times sick in as many weeks I am worried that people may think I am faking it. I have an exemplary sick record and work very hard but cannot get the energy to go to work & when i do get there I cant think straight. I have the aches in the legs and the back and suddenly go from feeling well to very unwell with chills and pains and struggle to walk. I had the swine flu and never been the same since. One thing I notice is most of the people had very active lifes before the onset of PVFS. I think we sometimes go into overdrive and dont realise that this can do more harm than good
sureno
2/15/2010 4:36:20 AM
hi i had like a constant headache for a cpl weeks not long ago it wasnt really a headache more like a constant swelling feelin at the back of my head my doctor told me i had a virus i had blood tests etc ,now the head ache is gone ive been constantly tired for the last 6 weeks have barley been able to train, kickboxing gym etc which i did all year last year i find it hard to do a days work i reckon i got this post viral fatigue ,my father was sick for 7 years with me chronic fatiguei hope it dont last that long this website has been good to read i am able to relate to alot of these speeches
Shane T
2/11/2010 6:08:17 PM
Hello fellow sufferers.. Here's my story. About three months ago I got a nasty flu (perhaps H1N1) and I was completely out of it for about 5 days. After two weeks I was mostly back on my feet, when one day, I started getting a feeling like my throat was closing up. I went to see a doctor who thought I had a mild infection in my throat who put me on antibiotics for a week. A day after I stopped the antibiotics, I got a nasty pain in my left eye. It's now mid-february, and the pain in my eye, and the tightness and pain in my throat has not let up. Doctors and specialists have so far found nothing of help, and here in Canada, it takes a long time to see specialists, delaying treatment. I thought I had some kind of reflux problem because of the throat tightnes, but so far, drugs to control reflux have been to no avail. I'm lucky, I've gotten a tiny amount of energy back, enough that I can make it through the work day, make food for the next day, then collapse in a heap and sleep. I'm also trying to do about 15-20 minutes of cardio per day, although I might be overdoing it there. I still have terrible days, though, where my body feels heavy, I feel fatigued. I get nonstop headaches. Also my eyes are getting redder and redder by the week. A month ago nobody noticed, now people comment on it all the time. On good days I feel that there is hope, that some day I will be well again, on bad days, I feel complete and utter despair+anger. Everything I enjoy about life was taken away from me in an instant. I've found new things to enjoy since then, they sustain me and barely keep me going. I'm a musician, I live for music, but because of my eye pain, looking at a screen is extremely painful and causes even more redness, meaning I had to quit promising contracts and work. I cannot wear my glasses meaning I see the world in a blur. When my throat feels like it's closing up, and I get fatigued, I've learned to just hang on instead of panic. I read a comment here where somebody suggested keeping a journal to track your recovery, I think I'm going to start doing that. So I can't say for sure what I have, I really don't know. Maybe post viral fatigue, maybe complications, who knows. The hardest part is not knowing, while feeling your body deteriorate, your life completely disrupted, and no idea how long or if ever you will get better. The physical symptoms are just the icing on the cake. I wish you all the best of luck and a speedy recovery from your ailments.
Charlotte
2/11/2010 12:50:56 AM
I'm going to see the doctor tomorrow about my fatigue. I had a strange virus at the start of my term in October where I could feel it moving round my body whenever I took paracetamol, and since then I have been exhausted. Even though I did nothing during my Christmas holiday to try and recover, it hasn't worked. Now I'm really struggling to keep up with work and this week has been the worst: I just cannot force myself to concentrate anymore. My concentration levels are very low, my limbs feel heavy and I have a slight headache and backache all the time. It's even worse when I'm stressed because my eye starts twitching and I lose my appetite. I can very easily lose an hour or so by staring at a wall with absolutely no perception of time. I need at least 8 hours of sleep a day to function... I think I would sleep 10 hours if I didn't have to get up, and every morning I have trouble forcing myself off the mattress. My once very good memory is now riddled with holes. The doctor I saw at Christmas did a blood test and there was 'nothing wrong with me'! I hope this doctor will give me more help. Good luck to everybody else in their recovery. I think I have maybe mild PVFS, but I certainly know what it's like to feel so pathetically tired all the time.
Adrian W
2/8/2010 6:30:08 PM
Thank goodness for this website. I have been starting to grow more and more concerned about being ill for so many weeks now (6 altogether), with 4 of those weeks off work because of 'it'. I am still not 100% well, more like 80%. It is like getting better in 'slow motion'. The Doctor just told me I have Viral Fatigue and, like some of you folks, blood tests and chest X-ray came back 'all clear'. This site is so useful/ reassuring.
Sarah
2/8/2010 10:29:55 AM
I got the flu back in October '09. I'd never had the flu and knew it must have been that when I couldn't even get up in the morning. It came on so sudden and strong. I ended up missing a whole week off work and, despite feeling exhausted and still ill, I returned the following week. While off I was unable to go food shopping or even look after my cats so I had to beg a friend to do it for me. On my return to the office everyone was great for the first week. Then my health has deteriorated again, I had a really bad cough for 4 months (two chest x-rays and 6 courses of antibiotics) and since then work colleague are getting less tolerent. I go to my bed every night no later than 7:30pm and sleep right through till I get up for work at 6am - feeling more tired than I did before I went to sleep. My Dad told me I was oversleeping so I went to bed at 9pm a couple of nights and that was far worse. Feeling so exhausted I then try and work all through the day with people telling me I should have more energy because I'm young (24 two weeks ago). I find it difficult to concentrate and my memory is getting so bad. It would all be okay if I knew exactly what was wrong with me but the doctors seem to be sending me for endless tests with no definate result then more tests. At the moment it is my thyroid they are testing. I've got to the point where I am so fed up I can't do anything except sleep and try and make it through work. My social life is on a downward spiral and my body is close to giving up. I've recently had these bad headaches that make it almost impossible to do anything and then I get sick. All the doctor has given me is paracetamol and I'm sick to my back teeth of it all. Is there a light at the end of the tunnel?...
Cate
2/7/2010 12:44:23 PM
I was diagnosed with Chronic Fatigue about 12 years ago. It started with a flu like illness that lasted a few weeks, that with hind sight was probably toxoplasmosis, but I just didn't recover - aches, severe tiredness, and a 'dull' brain, and I lived on the sofa. My doctor wasn't much help, just telling me I was depressed but eventually sent me to se an ME specialist. Such a relief to know what it was. So desperate was I to get back to normal that the minute I had a good day I would over do it and it would take 3 or 4 days to recover. This started to improve and gradually the recovery period reduced and I was slowly able to do more. A really helpful suggestion from the specialist was to keep a diary, rating how good you feel each day out of 10. It allowed me to see that things were improving which picked up my spirits and helped me recover. I also went part time at work, got married and had a baby. It was a couple more years before I remembered how to run though! Frightened now that I have something similar as I have had an infection for 4 weeks which is coming and going and the blood tests were all clear. Aching and in bed at the moment but tomorrow I am back on duty as a busy mum with a business I run from home and a dog to walk. Help!
josh
2/5/2010 11:01:24 AM
i have been rearly ill for 2months now first the doctor said i had swine flu.in bed for weeks could not move can not think straight rearly bad headaches now they have gone i feil sickly all the time dizzy my legs feil like they are going to give way my family dont help i have thought about takin my own life i cant go on anymore
Hywyn Foxhall
2/4/2010 3:01:57 PM
Adam D: Same here! I had a nasty dose of Plasmodium Falciparum in Africa, and that was in July, 2009. I have had three blood tests since and they all came back clear, but I still feel like I did while I was suffering from malaria, minus the vomiting and fever. Losing some school work as well, but I suppose one of the best treatments is just carrying on, I suppose. This PVFS seems to have worsened the last few weeks, though. I have been relatively OK before then. Hope you all recover, guys and girls!
Rahul
2/2/2010 4:39:10 PM
Gosh guys, I had some kind of viral urinary infection two weeks ago. My fever is gone but I feel dizzy every now and then, even nauseous. The feeling is a bit like I want to emerge from this tunnel of having symptoms without being sick. Hope I surface soon, and thank you for this website. My girlfriend sometimes wonders whether I am just making this up or what's going on, but I know its real.
Sallie-Ann
1/30/2010 10:02:35 AM
Hi everyone. What a relief to see that I'm not on my own with this illness. I started with a bad chest infection which seemed to be worse down my left side in september last year. Since then I've had most of the symptoms you guys describe, the most scarey being the blured vision and sore eyes. I'm back at work now but can only manage four hours a day 3 days a week-money is tight which doesn't help the stress levels! Has anyone else suffered with bad acid indigestion? My doctor hasn't been very helpful and when I mentioned this and the sore eyes she said I had to be careful not to attribute everything to PVFS!!!
Alex
1/27/2010 6:41:59 PM
I Had swine flu July last year, and kept feeling really tired and ached all over since then i have 3 colds and another 2 episodes of flu which started 3 weeks ago and still feeling awful, as im the virus is putting strain on my heart and lung with high blood pressure and wheezy chest. I work in the medical profession and have heard rumours of Dr's concerns of an increase in patients with these symptoms all who have had swine flu and fatigue, the gen consenus is there is more to this virus than medics are letting on and feel that the after effects are very long term does any one else know people who have heard of anything similar
Rob
1/25/2010 2:07:40 PM
I too got diagnosed with this condition last year. After a lot of research I found the following made a massive difference for me. Cod liver oil capsules once a day everyday, high fat foods and completely cutting out sugar. I noticed a massive difference in 2 weeks. I can only think cutting out the sugar gave my body chance to rest and the high fat foods gave my body additional energy. I'd recommend the above 3 things to anyone with the condition!!!
Ellie
1/21/2010 12:23:26 AM
Post V Fatigue is probably worse than the initial illness. I thought I was dying during the swine flu and then once I started to be able to walk and eat, just one meal a day at first, for 2 weeks I noticed I always wanted to lie down. that was scary as i do running, gym, resistance training and I couldnt sit without slouching to the side and sneaking a nap if someone didnt speak to me for 2 minutes. I recommend to try eating more I lost loads of weight without really noticing... my skin was saggy and I didnt even think about why that was, then I went out and noticed the strange up and down looks i got from work colleagues and family .... your body has been through something and through the process it has been robbed of something so you have to give back. Try some exercise as it increases the need to sleep and eat and that perpetuates the need to eat more which strengthens you and builds stamina and so on and increases ability to exercise more . take multi vits, my doctor recommened it and I poo poo'd at first, it but then i noticed the difference in 48 hours and it stopped me from living on chocolate, orange juice, and chocolate. its not fun but you can build your way a solution to get out of it.
Cindy
1/20/2010 1:24:19 PM
I have been ill for 9 weeks now, started with a nasty viral infection which has now gone but I still feel rubbish. Dr says I have post viral debility! At times its just as bad as having the real flu! Thankfully I dont have the tiredness you guys have, that must be so hard for you all. Heres to being 100% well again. Cindy
Lisa b
1/20/2010 12:00:34 AM
I have just been diagnosed with pvfs and I feel massively depressed. The constant feeling of nausea makes me not want to talk to people. I feel my husband thinks I am being a fraud. HAs anyone tried the whAt the heck response And gone back to a normal lifestyle of exercise etc? I Asked my dr whAt would happen if I just tried to ignore it and carry onregardless (nice thought if the fatigue doesn't catch you After 5 min). He sAid it might worsen And lengthen it but HAs anyone had a different response?
Amanda
1/13/2010 8:18:01 PM
I am so frustrated! Doing anything really exhausts me. I need help to get up in the morning, it seems like a lifetime to get dressed and often I can't even think about cooking. Thanks for being here folks, it does help.
Belinda
1/6/2010 8:49:39 PM
Stay positive guys, I suffered from PVFS for a few years and have almost returned to full health. I have been well for about 10 years now. I do have the occassional 'relapse' after illness but they're getting less severe each time. I recovered using a combination of dietary changes along with incremental increase of physical exercise, physiotherapy and anti-depresents (which were for the pain as much as they were for the depression - which of course developed after having PVFS). If you want more information about how I went about my recovery let me know and I'll post more.
Pete
1/2/2010 5:35:47 PM
I was diagnosed with post viral fatigue about eleven years ago after a really bad sore throat that lasted for several weeks. I then started to get bad pains in my neck and in my calfs and also feeling spaced out and tired. I'm much better now but still get tired from time to time and i found it helped me to only work on a part time basis. I'm an avid cyclist and bike it to work which takes about half an hour, i was able to keep this going and getting off and walk if i felt rough. I think this has helped me to recover as i've heard graded excercise can really help where you try and increase your energy levels and do a little more each day. Please be careful though and if your body tells you to stop don't over do it as you could make things worse. PVF is very much an individual illness and some people can't get out of bed never mind get on a bike so i've been lucky in this regard i think.
prue
12/14/2009 9:50:07 PM
I keep kidding myself that I havent got PVCFS, I dont want this illness, I have had lots of blood tests and have weekly iron injections as my GP says my symptons are due to anaemia, I have been off work for 6 months with pretty much all the symptons that everyone has mentioned, like feeling light headed and like Im drunk! I just dont feel right, I have no muscle strength any more and isnt it annoying when people say "well you look fine!", and then there are the times when you keep trying to socialize and start to feel really rough half way through the evening and start to fade, feel frail and want to curl up in a ball and sleep. Whats depressing is that I think its down to me to fight my way back to a normal life again, I keep thinking maybe this is a sign that I was not looking after myself before and life needs to change , so has anyone got any ideas!!!
Pat M
12/4/2009 6:41:09 PM
I had a biopsy for suspect neck growth this was clear since this I had a slight sore throat and general tiredness this is now th 16th week of trembling feeling sick spaced out memory and concentration loss general unwell reapid pulse you name it I feel it. great website good luck to us all.
Daniel
11/24/2009 1:37:57 PM
i got a chest infection some 8weeks ago and for the last 3 weeks have been at work on a part time basis ive found it very hard and as im not doing much and am no help to my team mates i get tried and shaky my hart rate goes up and my joint's ache as im working whenever i bend down and the come up i get dizzy and just cant get rid of the spaced out feeling ive started to ask myself am i getting over it or learning to deal with it as i have had a good couple of days then wham it just comes back
rena
11/23/2009 12:15:20 AM
i had swine flu six weeks ago and have been in pain all over my body ever since. was at docs last week and he told me i have post viral fatigue. he advised me that it's important to take as much control of this as i can as he has seen it swallow up people's lives if you let it get a grip. i was to try to go back to my work tomorrow as i've already been off work for the six weeks, unfortunately i'll need to pay him another visit tomorrow because i feel even worse now. i went out shopping with my sister the other day to buy a gift for my daughter's birthday and have been in my bed ever since. i also have a seven year old daughter who i feel more sorry for as i feel like i don't have the energy nor the life in me to take her out places or even play with her. this makes me feel inadequate as a mother and a parent and really upsets me because she doesn't understand what's happened to her mum. spent most of the day today in my bed crying because i feel guilty.
James
11/19/2009 3:58:36 PM
it's reassuring to know we all experience the same symptoms. I have found using Korean Ginseng along with multivitamins, lots of gentle exercise and fruit/vegies has helped enormoulsy. Cutting back on caffeine and alcohol (unfortunately) also helps relieve the dizziness and fatigue. Having a supportive partner or friend and talking about it also helps get it out in the open and reduces tension & nerves. The body has an amazing ability to repair itself if you give it the best chance. Good luck and stay positive.
Sheila
11/17/2009 3:04:01 PM
Having read the comments on this page I feel fairly sure I have got pvfs.3 weeks ago I picked up a nasty virus which went straight to my chest and set up a secondary infection. I could hardly breath and thought I was going to die. After a course of anti biotics the chest infection has all but gonebutn I have a racing heart every time I try and do anything and feel utterly exhausted. I look very pale, appetite is poor and I do get quite thirsty, strange for me. The doctor seems surprised that I do not seem to be recovering as hoped. Now I feel a bit better having read the similar experiences on tis site. Thanks.
liz
11/13/2009 8:55:49 PM
yes,so frustrating.got ill last march,severe headaches & tingling allover,felt like i had a pilon inside me & no energy.you guessed it,blood tests all clear!!!.have improved but still have the headaches & painful limbs.and milder tingling sensations. tiredness still a problem.
Pat_M
11/12/2009 8:54:31 PM
fantastic web site, I thought I was going mad, been ill with most of symptoms for 3 months now, crule comes and goes.
julie
11/12/2009 1:25:26 PM
in response to axels comment re glandular fever,i was diagnosed with that in july this this year after months of feeling like i was going to die or going mad.i struggled on for months before finally seeking help.i was so relieved there was a reason for how unwell id been feeling.i cant remember much about the summer as was sleeping a lot and doing very little when not in bed.i have returned to work this week,just phased return doing very little while there but have felt dreadful.i have just got up and in desperation have been looking on the web for some help.i have found the comments on this sight so helpful as you do feel like the only one and it is hard to explain to friends and family etc how you feel.the comments re alcohol and feeling worse ring true with me,also the need for sugary food.i would be interested to hear if anyone has advise re diet or supplements.i wish you all well and thank you for giving me some hope.
Claire
11/2/2009 8:54:41 AM
I also had glandular fever and kept returning to the doctor saying i just dont feel right im tierd, ache, feel sick, increased need for sugar and energy, feeling dizzy and getting headaches and stressing out much quicker than usual and im generally just not myself. I recently saw a different GP and they told me I have Chronic Fatigue Syndrome but nothing as been done I have been given no advice or guidance and really cant afford to take any time off. im just wondering what I can do to help myself finally get over my illness.
Axel
10/21/2009 12:57:21 PM
Hi all. Became ill in summer of 2008 and was diagnosed with glandular fever. I have not been the same since. Whilst I now feel well enough to go to work I have totally withdrawn from social life as I feel very tired all the time. When run down my glands go crazy - mostly around the clavicle and the sides of my neck as well as under the jaw. Then there are the random shooting pains and aches, palid complexion, restless sleep and sweats. It's a vicious circle. Some days are better than others and I know I'm still the person I used to be but I feel a shadow of that. I don't drink anymore due to the knock on effects. I feel it's hard to justify to people who don't really understand. Has anyone else had a bad run with an illness sparked by glandular fever?
Peter Lawton
10/19/2009 9:09:53 PM
Wow this site is great and im glad i took the time to read. I had the 'Flu' around 4 months ago and the symptoms never went. I have the dizzy, spaced out feeling, aches and pains, headaches, my feeling seems affected although I can still feel things (hard to explain). Ive also become nervus and dont sleep very well. I find the memory problems the worst but now know its all part and parcel. I also get very tired and like others am worried about going out of the house as I feel im going to collapse at any moment. I also often feel like I cant brethe, even though I can but I think thats to do with the spaced out feeling. To start with my docotor kept telling me it was in my head, I went into hospital twice, had 2 chest x-rays which both came back fine! I also had around 8 blood tests which all came back noraml. My auntie has full blown M.E so I do feel that at least what I have is better than that. I do have better days where I am able to do things, have had a few good days but also have very bad weeks. I also have found that despite feeling bad, sometimes, pushing myself to get up and do small things like shopping or a day out somewhere can make me feel better. I will say that I have found I am unable to drive due to the spaced out feelings but can still ride my motorbike from time to time, the wind on the face helps to keep me alert and also really boosts the spirit, maybe the adrenaline helps too. Others may think im crazy but I'm 23, life is to be lived so when you can do as much as possible, even if you feel bad for days after. try to keep busy, dont lay in bed all day doing nothing, even if its only walking around the house, it better than nothing. In my limited experiance getting up and about and actually doing something makes me feel much better than just laying in bed all day. Hope i've helped. Pete.
Caitlin
10/16/2009 9:26:47 AM
What a relief! I crashed three months ago and was diagnosed with anaemia. Following two months of iron supplementation my condition didn't improve. The symptoms were perpetual including brain-fog, memory loss, confusion, constantly spacing out, disorientation, dizziness, vertigo, loss of coordination, weakness and debilitating fatigue. The feeling of being heavily intoxicated dominated my ability to function for two months. I too thought I was losing my mind. The doctor assured me that these symptoms were due to the anaemia and that persevering and maintaining a normal routine would see to a recovery. I can completely sympathise with everyone. The quality of life is insufferable. The most simple things became impossible to do alone, showering, buying milk, driving etc. I finally got another opinion and it turns out I have PVFS. A month since this diagnosis and I feel like I'm slowly but surely getting better. I can attribute this to rest, decreasing physical, intellectual and emotional stress and doing things I enjoy without the pressure to perform 'normally'. I understand that this is virtually impossible for most people. Luckily for me I'm young and have a family that are still willing to support me. Sadly, I had to quit my job and take leave from my degree in Architecture but in the end it's all so I can get back to my life wholeheartedly instead of being a residue of my former self. All I can suggest is to be nice to yourself and have as much downtime as possible. Take a slow walk on the beach, read a good book and essentially do all the things you want to do but never have time to do. You will feel better and more able for it!
David T
10/10/2009 12:35:36 PM
I am writing this on behalf of my wife. she is in hospital at the moment. she has had PVFS since august but has got a lot worse the last week. Drs think she had a throat infection as well. She has collapsed a few times and was admited to hospital yesterday. They are carrying out all sorts of tests but so far nothing is showing and they keep coming back to it being PVFS. she is currently in a lot of pain in her legs and loads of other symptoms including feeling the hot tingling in her body. Cant bare to see her so ill. she is an amazing person.
Jenny
9/8/2009 5:57:01 PM
I developed PVFS in May 2005 after a bout of flu and graually clawed my way back to something resembling a 'normal life' including returning to part time work in October 2008. Things were going really well I still tired easily when doing anything physical but life was definitely improving. In the first week of July I developed Swine Flu and you guessed it - it has re-triggered my PVFS, although thankfully not as severe as last time. Although I am still unable to cope with the most basic of housework and even getting showered and dressed completely wipes me out for a few hours. All the symptoms I had before plus some lovely new ones to contend with this time! This time round I have had some new symptoms including pain and pins and needles in my right arm and hand and my family tell me I keep turning a really ashen/grey colour in my face, am getting cold sweats and night sweats. I am also diabetic and my blood sugars have gone way out of control. It is so frustrating I have resigned myself to not overdoing things but I talked my husband into taking me to the shops for half an hour last week as I was despereate for a change of scenery - I used my mobility scooter but even that was just too much and I was wiped out for 3 days afterwards. So not much chance of getting back to work yet - I have just seen the doctor who has signed me off work for another 2 months (I've alreday been off 2 months). My new employers are very understanding but .... The doctor is referring me to a PVFS clinic this time. I feel so sorry for my family as this is not much fun for them and I feel awful that I have to accept help from my 80+ year old mother-in law who looks in on me daily. I should be helping her! Still I have to believe I beat this once so I can do it again, you just feel so much more vulnerable now.
CLAIRE
9/8/2009 1:42:02 PM
Ive been diagnosed with PVFS,in Mar i took a really bad throat infection, pain in throat went but fatigue,nausea, weakness,neck and shoulder pain,confusion started. Off work at moment was prescibed Fluoxetine, started taking it to help energise me, but didnt feel right on them, started getting tingling, muscle twitches all over n feel a warm sensation through my body at times, tremours n what seems like watery eyes.
Stephen
9/8/2009 11:07:45 AM
I have had a combination of several of the symptoms and yet some days feel pretty good and symptom free. Have been off work for a month and in this economic climate worry about my job and the cynical reaction of my colleagues.I id return to work- but lasted days and kept falling asleep and had very poor concentration and recall. The commute to work sealed my fate: as couldn't trust myself to stay alert.Blood test results awaited. Pleased to have stumbled upon the site and feel that there are persons with shared symptoms.
Alice
9/3/2009 12:58:09 AM
I'm afraid my boyfriend has PVFS. He had a viral infection in his heart earlier this year, and now he has recovered from that, he is consistently tired and gets dizzy and depressed. He has good and bad days. I hate the bad days because i don't know how to help him.
Serena
8/27/2009 9:43:43 PM
The dizzines, detatched, unreal, spaced out feeling is my main symptom. Apart from feeling exhausted all the time but I get the feeling it is mild compared with some of your stories. I had flu like symptoms 5 weeks ago and feel like I have never properly recovered. I just feel like im hungover every day even though Ive had a really good nights sleep. I really don't want this to develop into fll PVFS, Do you think this is the beginning? I dont have nausea or pains in my neck or back but did have very achey limbs as part of the flu symptoms. Do you have any advice on how to cure the symptoms? Thanks and I really hope you all recover as quickly as possible.
Collette
8/13/2009 1:01:30 PM
I have just found this site when searching on Google, after a telephone consultation with my GP half an hour ago, to discuss my recent blood test coming back Normal!!! he is going to refer me to a clinic at my local hospital for Post Viral Fatigue?? I had never heard of this condition but after reading this site i believe i may have it. Also it is just exactly what my brother in law has been suffering with for years now and nobody has mentioned it to him. I have just called him and refered him to this site. I will let you all know what happens at the clinic. I have been feeling as if "i have nothing left in me" to do anything, eg. cleaning, gym, work, everything really. I could go back to bed now and its only lunch time. I have a feeling of "not being here" its weird and i feel people will think im going mad. I am glad there is something i can read to help me.
Lee-Anne
8/12/2009 11:17:45 AM
Thank you all so much for this website. I have just been told i have PVFS. I have been tired for a few months but got married in May and thought it was just the stress, build up to the big day, until the start of July when i started to have the pains, the long lie ins were i though i was just being lazy. I then took tonsillitis, then the flu symptoms, aches and pains,sweats, feeling spaced out. Was told on 2 occasions that i have had Swine Flu and that the symptoms would clear up. After yet another visit to the Docs i had blood tests which, yes you've guessed it, came back clear. The symptoms have stayed with me and at the moment i am feeling like all i talk about is being tired. Im sure my family are sick of hearing it. Im finding it really frustrating as im always on the go, at the gym, meeting friends, working long hours etc .. i find it really difficult to sit/lie and do nothing. The most frustrating thing is the feeling of not being in the same room as your body!! I cant even be bothered to watch tv or read, my consentration just isnt there. I had a good day yesterday and stayed awake for most of it, now my husband thinks im nearly 100%. I havent mentioned the fact that im aching and my neck feels like its holding a 100lb weight. I can not wait to resume normal activites!!! Hopefully that day is around the corner.
Beatrice
8/1/2009 6:25:12 PM
Isn't it reassuring to know that you're neither dying nor mad! I've had PVFS symptoms for 3 years: dizziness and spaced out, chest pains, joint pains and lower back pain; sweats without fever, memory lapses, a feeling that a creature was living inside me, then that awful glued to the mattress feeling that keeps you off work. I've given up so many activities. All I can do is go to work (when I can), then come home and go to bed. I've given up exercise and many social activities. It's no life. My GP understands,but it's websites like this that give me great hope.
jo
7/30/2009 4:28:07 PM
This is what i have! You guys are describing all the symptoms i have. I dont feel safe going out the house. Feel like im going to collaps at any moment. Or if something was to happen, i feel like im in no mind to deal with it. I cant think straight and lifes a blurr. Dont feel like im here anymore. Been 2months now. Racing heart beat, shaking, feeling sick and dizzy, depressed, teary, drunk and confused, blurred vision. When will it end? Enoughs enough now. It affects everything. Hope we all get through this soon. Its just awful. xxx
Willow
7/29/2009 4:18:16 PM
I think this might be it - have been laid out for 3 weeks following flu with all the above - will run past GP
Claire
7/26/2009 11:42:08 AM
Just been to the doctors for the 4th time basically begging him for an answer as to why I feel so bad he gave me the diagnosis of PVFS and also a form to fill out to see if Im depressed!Course I'm depressed this is sucking the life out of me! Mine started with flu like symptoms which wasn't bad enough to put me to bed for a week but it left me feeling wiped out all the time plus I've had a sore throat for a month which made me lose my voice for that long even now it comes and goes! I hate feeling like this as I've always been fit & active. Getting better slowly, I can last 5 hours max then have to lie down the worst of it is you feel such a fake when you tell people as outwardly you look fine but I still get the tremors e.t.c plus feels like I have no control over my body it's like feeling like a robot it's wierd ......can't wait to feel 100 % again thanks for this web site it's helped me to understand x
James Hooper
7/9/2009 2:16:47 PM
Hey, this is the first website, or anything for that matter that has actually hit the nail on the had in terms of symptoms. The one I have real trouble with is the 'spaced out' feeling, not very nice at all. Only thing to do is try and deal with it. I have had symptoms for 4 months now, I start medicine in 2 months time. Hopefully everything will work out ok, but have to wait and see.
Simon
6/30/2009 8:59:26 AM
I think I have PVFS, I've had the blood tests all clear, I've had chest x-rays again clear. I have all the same symtoms. I also get muscle twitches and am permanently tired. I felt I was getting better. I've now got a cold and feel lousy again
Polly
6/19/2009 8:38:43 PM
These are all the symptons ive experienced, ive had post viral fatigue for just over 2 years but its spoiling my life. I just want to know when it will go but i know noone can answer that.
Polly
6/19/2009 8:38:43 PM
Ive had post-viral fatigue for over 2 years now. When i read this its so familar its exactly what i suffer with. I get severe headaches the only thing which helps is to go on long walks to clear my head.
olivia H
5/16/2009 10:27:47 PM
Thank you for this site. Suffered myself for a few years but with short periods where I was almost ok. Whenever I get a chest infection it triggers a distressing relapse like right now. Symptoms exactly as described but with a racing pulse and feeling as if I will pass out when I stand up. Also really bad confusion, balance problems and tingling sensations. Def agree with Adam - how can the blood tests be clear its soooooooo frustrating. I've often felt like a crank or like I'm ashamed to talk about my 50 symptoms. I only tell people a few and then feel really ridiculous. Everyone seems to have their own unique symptoms on top of the common ones. Its unbelievable - how can all the blood tests come back normal when we feel so disabled. Meditation helps me take my mind off the agony :)
Adam D
4/16/2009 10:00:46 AM
Wow, I get the exact same symptoms. I haven't been officially diagnosed with PVFS but have been ill for 2 months now following a bout of malaria. It's very frustrating when all your results come back 'clear' but you still feel sick! Good luck to everyone that's suffering at the moment and I'm really looking forward to getting out the 'other side'.
CARA
3/27/2009 5:52:19 PM
I get all of the above but also headaches, twitching in the stomach, a resounding heart beat, sensitive to light / heat / noise etc.

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