Review under way into Cornwall's ME service, Post Viral Fatigue / Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / ME / CFS

Review under way into Cornwall's ME service

Cornwall's chronic fatigue syndrome (ME) service is being reviewed. The Royal Cornwall Hospital's Trust said it had temporarily closed referrals for new admissions after the retirement of the head of the service. The Trust also said there was "a national shortage of experts in this field". About 300 people a year in Cornwall are diagnosed with the condition and there are currently about 80 patients waiting to be seen. Cornwall's ME service provides therapy clinics in hospitals across Cornwall, including Stratton, St Austell, Helston and Penzance. Elaine Peller the Chairman of Mesh, an ME Support, Help and Action group in Cornwall, said: "We're passionate about our service. We are absolutely desperate for them to get that medical replacement in place as soon as possible." In a statement the hospital's trust said: "We are looking at models of services that are working effectively in other parts of the country and which make use of greater input from psychology and occupational therapy specialists. "We are involving local patients in the review and whilst it is completed, NHS Cornwall and Isles of Scilly have agreed that we should temporarily suspend new referrals to the service. Patients will continue to receive care under the management of their GP who will still be able to make urgent referrals where a patient's need is particularly acute." ME is a neurological condition which can leave patients feeling exhausted with muscle pain, flu-like conditions, digestive conditions, swollen glands and nausea. Dr Charles Shepherd, from the ME Association, said: "Unfortunately the service problem in Cornwall is not unique. There are other services with this illness closing down in other parts of the country and they're not being replaced by new services springing up elsewhere."
Wed 28 Aug 2013
Hot forum topics
Do Her Symptoms Sound Right?
Hi, I wanted to write a list of my daughter's symptoms and see what folk think. Is it PVFS/M.E/CFS? [U]Always present ...
4 replies, thread by Emily's Mum
Hi, Just thought I would introduce myself before I wander around and read other posts. My name is Stacey, I am ...
5 replies, thread by Emily's Mum
a slight improvement... I hope.
At the beginning of the illness, I experienced heart attack like jolts to my heart which felt as though my body ...
16 replies, thread by Kevin
Hi to you all. I've been suffering now for 6-7 weeks with tiredness, aching limbs and lightheadedness. If I do too ...
6 replies, thread by Steve from Hull
Hi! My PVS story
Hi folks So glad I found this place, was beginning to feel like I was the only person ever to feel ...
24 replies, thread by Kendo
Sauna use for CFS suffers
Hi Kevin and fellow sufferers, 10 days ago I bought a Far Infrared sauna and am doing 20 minutes a day ...
4 replies, thread by tokyo99
Hello, I'm Kate and I'm living in Brighton. I was diagnosed with post viral fatigue following a virus in Feb 2014. ...
5 replies, thread by coolkat
I need advice :)
Hello, My name's Hannah and I was diagnosed with post viral fatigue a few weeks ago. That was after about 6 ...
6 replies, thread by hannah