Help me :(

[Danny880044]

Awe Trapped, your reply is so sweet! Thank you for the help. It just feels like a constant battle and with the abscess coming back I don't even know if I'll ever recover from this which has been going on for a good two years now.

I had some bloods taken this morning by a nurse at my surgery at the request of a lovely female doctor (in training for GP position) and no doctor has taken me so seriously thus far. She believes my symptoms and doesn't try to put them down to other emotional/physchological problems (of which I have suffered all my life haha).

I guess with the abscess back it somehow reinforces my case in the eyes of doctors and eventually a CFS/ME specialist (when/if I get a referall from the doctor).

Thanks so much for your support <img src="images/smilies/smile.gif" border=0 />

Dan

[Danny880044]

Hi guys, I'm so bloody angry at the moment so please excuse my mood.

Most of you know I had the operation under a GA at hospital back in April. All went well apart from the typical ME/CFS symptoms. This weekend my left lymph nodes are swollen under the same arm that was operated on in April. This is mad! I can't stand this much more to be honest.

Had bloodtests today and been told to see a doctor tonight in the open surgery after 5:30pm. The nurse who took my bloods had a look and I explained what happened last time, she said the doctor is most likely to refer me to hospital to see the surgeon/doctor who was involved in my care last time. The swelling is the same, not as severe but will probably need another bloody GA <img src="images/smilies/upset.gif" border=0 />

I don't know what I expect anyone to say, but just some words of support would mean a lot to me as you can imagine.

Thanks,
Dan <img src="images/smilies/upset.gif" border=0 />

[Trapped]

Hey Dan,

I am seeing a nutritionist and we are working on my lymph nodes which are severely affected with M.E. Basically they get so clogged up and in order to start recovering they need to be clear (in simple terms, she explained it more but was alot to take in) So perhaps you could look into seeing a nutritionist, preferably one with experience in ME.

They will start you on all sorts of supplements fish oil, Aloe XL Inner Leaf, milk thistle to name a couple. lots and lots (and lots) of water and a complete change in diet. Just a thought, maybe if things dont improve it may be worth looking into. Keep smiling, thing HAVE to get better (thats what i try to tell myself all the time!) <img src="images/smilies/smile.gif" border=0 /> x

[Barbarian]

Hey Dan,

Bummer that you have to go through this again - have you had feedback from the hospital yet?

I think I mentioned it earlier, but I just wondered if your GP ever tested you for Lyme Disease in the end? Especially if your cat is an outdoor type?

Well, might be worth discussing next time you see him/her. Or perhaps with that trainee Dr you saw?

Let us know how you're getting on!

Cheers,

B.

[Danny880044]

Hey Barbarian, thanks for your reply.

I'll do the best I can to give you an update but terribly unwelll today with sickness and a high temperature.

I saw a new doctor on Monday, he was great and is the senoir at the surgery. He said it might need another operation but we can't do that uintil we have at least tried antibiotics once so I'm on a mega strong dose of pennicilen.

I had 6 tubes of blood taken Monday morning by the nurse lol and I asked what they are looking for and she said everything including lyme disease which she said you can get from ticks I think? So yeah with my cat being an outdoor chap it might be something. She said it's quite rare but she under strict instructions from the femaile doctor I saw to look for everything possible.

I'll keep you updated but might not be around for a few days with the way i'm feeling at the minute, feels like I have the flu <img src="images/smilies/upset.gif" border=0 />

Take care,

Dan

[Barbarian]

Good that they're taking it seriously and that the senior Dr is listening - hopefully they'll get to the bottom of it!

Yeah, rest up until then though..

Good luck with the recovery!

Cheers,

B.

[Init1972]

Hey Dan - sorry to hear you are up against it again - have a (((hug)))!!

Great to see the new Doc is looking into everything - if they are testing for Lymes then they sound like I need their telephone number!! lol

I have GP tomorrow to question why I have STILL not had a referal for an Xray & MRI Scan on my hip pain which I was origianlly refered back in March and the Physio is speechless as to why I have NOT had these done already firstly for the pain and secondly as I have been diagnosed CFS/ME!

I think the medical profession may VERY SLOWLY be starting to pay attention.....

Rest up to get rid of your fever and let us know if you hear anything back

Les xxx

[Danny880044]

Hi Les, it's so good to hear from you <img src="images/smilies/smile.gif" border=0 /> I've missed you over the past few weeks!

Thanks so much for the hugs, it's pretty much what I need right now lol. I've just got back from seeing the female doctor I saw last time, had a chat and she's spoke to hospital - all blood tests are clear. I've got to drop a sample of urine in (lovely) and then off goes my referal to the CFS/ME specialist centre based near my nearest major hospital, so easy to get to and I can breath a sigh of relief a proper diagnosis/support is on its way.

That sounds like a nightmare, sorry you're going through all of that. The NHS is soooo slow. You need the tests for the pain, it's not fair to expect you to go on suffering when there's other things which need to be done.

I wouldn't have had this good news so soon if it wasn't for being back at the surgery on Monday with the abscess coming back. The antibiotics seem to have it under control, fingers crossed they keep working. She asked me if I felt I was more unwell this week because of the infection/antibiotics or just generally. I said generally it seems they've got worse the symptoms.

I explained I was worried about depression/anxiety effecting a diagnosis, and she said you've had depression/anxiety since you were 13 - this tiredness started around the time of the abscess (which came and went over two years) and is new, as in, it's started recently.

Everyone's help on here has been fantastic, and you've all been so great and supportive. I couldn't have came this far without you all. But I'm not going to run off lol!

[Init1972]

<b>Danny880044</b> wrote:
<div class=quote> I explained I was worried about depression/anxiety effecting a diagnosis, and she said you've had depression/anxiety since you were 13 - this tiredness started around the time of the abscess (which came and went over two years) and is new, as in, it's started recently.</div>

Hey Danny - sorry just read this!
Depression & Anxiety - all part & parcel of CFS/ME and a SYMPTOM brought on by the numerous other symptoms and fluctuations we suffer not a CAUSE - having suffered depression youself you will know exact;y the difference between not wanting to get (depression) and not being able to get up but wanting too and being stuck (CFS/ME causing depressive tendencies) so you MUST press this factor with ALL medical people you see as that will point out the obvious to them so they can't exactly ignore it!!

This female GP seems to understand so I would insist on seeing her everytime (even it it means waiting an extra day - unless an emergency of course!!) if you can even after you have been refered - it is great to find someone who takes an interest and understands so I see it as our Job to help their understanding further by continuing to be their patient lol

The definition of an Abscess:
"A cavity caused by tissue destruction, <u>usually because of infection</u><span style="color:#FF0000"></span>, filled with pus and surrounded by inflamed tissue"

PVF/CFS/ME symptoms are usually the body fighting off an infection 24/7 so the system is constantly drained and unable to re-charge in the normal manner as a Healthy person can (by simple rest or overnight deep sleep) and when the body is under attack it conserves everything to protect the vital organs which induces the Fatigue etc so for yourself Danny it is wholly possible that the Trauma from the attack you suffered has put a massive amount of stress on your body and it can no longer cope due the the constant abscesses which is why all peoplke with PVF or those with the longer versions (6 months +) of PVFS/CFS/ME need to REST REST REST in order to brush their teeth and make breakfast most days. Think of yourself as a Mobile Phone battery which got to empty one day and when youn plugged it in to charge it could never get above 1/4 charged and everytime you used it you had to plug it back in again to recharge what you used - resting is our charger!

Les <img src="images/smilies/biggrin.gif" border="0" alt="Big Grin" />

[Init1972]

Danny - you Ok???

Les <img src="images/smilies/biggrin.gif" border="0" alt="Big Grin" />