Inspiration for young sufferersl

[Init1972]

What a great positive story to read - that has made my day!!

I can only take my hat off to you as a parent at your fantastic determination to help your daughter without the pressure most people seem to put on someone with the pain and exhaustion we expereince which can often be invisible on the outside.

I know we have had several younger visitors to the forum who have all had problems with their parents NOT believeing them which I as a parent myself, can't even understand HOW you couldn't believe your own child but I guess that all depend on the relationship you have with them.

I hope and pray I don't have to go through this with my own daughter - she is 6 on sunday - and keep an eye on her and ensure she rrests properly when poorly but careful NOT to wrap her in cotton wool too lol

Good luck to you both.

Les x

[d2jcd]

Hi everyone,

I often darted in and out of this site looking for " the cure" for my darling little girl who was struck down with this terrible illness in January of this year. I found all the stories and advice extremely helpful and wanted to " give something back " in terms of hope and advice for those suffering at the moment. My little girl became ill with a virus in January of this year, aged 9. She was poorly for several weeks and underwent lots of tests, followed by hospital admissions, which offered very little relief from the symptoms. Initially the pain was centred around her abdominal area and glands surrounding her neck, and armpit. She was in constant discomfort but conventional painkillers seemed to do little to help. We went through the usual routine of doctors suggesting that she may have problems at home/school , however, I knew that before she was struck down, our daughter was an outgoing, bubbly little girl with lots of friends and a zest for life. Doctors suspected that she may have contracted glandular fever, though two tests were negative, nevertheless when they tested her antibodies in her blood it showed she had fought the virus. Her consultant reached the conclusion after only six weeks that she was suffering from PVFS, and she was subsequently diagnosed as having CFS.

She had gradually become a shadow of her former self, not wanting to eat, talk, see friends, play or do anything else a normal child would do. She couldn't cope with reading, even listening to me read stories to her was too much. She never wanted to leave the house and dreaded visitors calling. I have the deepest sympathy with anyone suffering this illness, as although I have not been through the pain myself, I can appreciate how awful life is living with it.

The past nine months have been a living hell, not knowing when/ if my little girl was going to get better, but I can't tell you how delighted I am to say that she is now recovered and has returned to school in the last few weeks. If I'm honest, I'm not 100% sure why/how she got better but thought it may be helpful to others to let you know what I tried. I tried countless things from refelxology to hypnotherapy to Bowen tretaments and lots of supplements. I put her through a course of Perrin treatments for about fourteen weeks, but I found the treatment to not have any significant impact on her symptoms. She found the treatments very painful, and without any benefits to show, I found it very difficult to persevere with the sessions. I was also recommended to try Simba tablets ( immune regulators ) from a relative and gave her the minimum dose for four months. I was told to expect an improvement in three months and felt disheartened when nothing had changed. After about four months of taking the Simba I noticed small changes in my little girl and very gradually she started to take a small interest in things again. As the weeks wore on from mid August up until now she became stronger and stronger. Being immersed in warm water at our local pool
( at quiet times in the learner pool ) also greatly helped the pain. I don't know if any of the things I tried speeded her recovery in any way, or if her body just needed to take " time out " to heal but i thought it might be helpful for anybody in a similar situation.

Sending the best wishes for everyone suffering. Please let me know if there is anything I can do to help anyone, or if you need any more information regarding my amazing daughters recovery. I really wish the same for everyone else!


xxxxxx

[Marilyn]

I too looked up this site after my 17 year old grandson was diagnosed with pvf after contracting glandular fever. He has just started his 'A' levels but is now so far behind that there are doubts about him continuing. Not the end of the world as there is always college once he has recovered. As a Bowen therapist I am giving him weekly treatments as fellow therapists have reported good results from clients with pvf and I truly believe that Bowen supports the body even if the effects are not instantaneous. Will let you know how he responds in due course.