Post Viral Fatigue Chat & Forum

My recovery story from Post Viral Fatigue / Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / ME / CFS

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  1. #1
    Junior Member
    Join Date
    Feb 2012
    Posts
    10

    Hello! I'm a 30yo male and I've had the same symptoms constantly for 10 months now having initially been diagnosed with Glandular Fever. I recently returned to the doctor who said it might be PVF.

    Can any PVF sufferers identify with my symptoms, or am I simply not over Glandular Fever yet?! My symptoms are:

    Daily:
    -Swollen sore glands in my throat, get gradually worse through the day or following a bad nights sleep.
    -Headache - no specific location, just 'whole brain pain and fuzzyness', somewhat like a hangover. Difficult to concentrate and function normally. Gradually worsens through day particularly with any exercise, loud noise, bright sun light and stress.
    -Fatigue - Prior to August I had to sleep at least 1-2hrs in the afternoon but since then have not. Now experiencing general muscle tiredness that woresens if doing any prolonged activity. Was fully exhausted by a 15 minute walk last weekend, glands and headache started then fatigue set in. Had zero energy reserves for the walk back, took 40 minutes as had to stop and could only walk very slowly.
    -Massive appetite - I've been eating loads but not gaining any weight. If I don't eat every few hours the above symptoms worsen, but subside a little after eating (I have a healthy diet BTW).
    Often:
    -Sore glands in groin (below belly above crotch) - These only start to hurt after the other symptoms are in full swing on a 'bad day'.
    -Trouble sleeping - I've never been a good sleeper but find it harder now due to symptoms and worrying about the symptoms.
    -Depression - It's been 10 long months of feeling ill and tired every day. I love my job working at a special needs school, and used to play ice hockey, go surfing, take my partner out for dates, socialise with friends etc but have been unable to do anything and am feeling very down about it. I have also been signed off work on half pay and am very concerned about money.
    Sometimes:
    Sore glands under my ears - only happened twice when I was feeling really rough with all the other symptoms.

    I realise the symptoms vary wildly from person to person with both glandular fever and PVF, but so far I feel I still have GF. I also can't find anything about the increased appetite!

    All opinions and advice very welcome, thanks in advance <img src="images/smilies/smile.gif" border=0 />



  2. #2
    Junior Member
    Join Date
    Feb 2012
    Posts
    10

    Thanks for the response! Glad to hear you are making progress, I have downloaded Dr Myhill's book and will start to follow the treatment suggested.

    How long did you cut out activities for before symptoms were completely gone? I haven't done any exercise for 6 months, had a month off work doing nothing all day but still find that doing the washing up etc will bring on symptoms!



  3. #3
    Junior Member
    Join Date
    Jan 2012
    Posts
    11

    In my experience it's very hard to get "symptom free", but by cutting down on exercise/activity it is possible to get symptoms down to a tolerable level. This is usually where I start from and work up. It's very 'trial and error', but sadly so many things are for us!



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