Post Viral Fatigue Chat & Forum

My recovery story from Post Viral Fatigue / Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / ME / CFS

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  1. #1
    SJ
    SJ is offline
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    Join Date
    Jan 2012
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    1

    Hi there,

    I so glad i found this website as really did not know what was happening to me at first, id like to describe my symptoms and hear what some of you have to say as i am getting the familier wording from the doctor "its a virus, there is nothing we can do, it will go in time" - Thanks!! really helpfull when you have a full time job!!

    My symptoms have been exactly what has been described by a number of you on this website.

    For the last 4 months i have had the 'spaced out, detached dizzy symptoms', the first 2 months were horrific, the next 2 months have not been as bad compared to the first 2 months but i still cant work or go out or do anything i used to do before this happend.

    Ive been to the doctor about 8 times, had the blood test which came back fine and been told its a virus.

    I havent had any of the other symptoms mentioned on here, just the spaced out, dizzy feeling which is on its own debiliting enough and i really feel for all you that have the other symptoms on top.

    I know everyone is different but HOW LONG does this spaced out dizzy feeling last, i have had it for 4 months now...and is there anything i can do or take to minimise the symptoms

    Also, what do you do about work, i have a full time job, not been in work for 3 of the four months and dont know when il be able to return but need the income to pay the mortgage and other outgoings

    Also is there anymore a doctor can do other than tell you its a virus!!



  2. #2
    Senior Member
    Join Date
    Oct 2011
    Location
    Nottingham, UK.
    Posts
    150

    Hi there.

    Yeah, sounds post viral to me, pretty much the exact symptoms that I've got too. My main one's been this spaced out and dizzy feeling which I've had since Novemeber 2009 which still hasn't gone away!

    Mine all started from viral pericarditis, so all my symptoms are heart related - dizziness, palpitations, breathlessness, chest pains and the fatigue (which has finally gone for good - fingers crossed!) I was lucky enough to be diagnosed on my first visit to a private cardiologist.

    All my tests and scans came back fine - blood tests, about 6 ECGs, tilt table test, ENT specialist. My heart scan showed up the fluid around my heart which showed it was a virus, but nothing can prove you have chronic fatigue.

    I eventually lost my job as I couldn't got for about 10 months, so we decided it was best to stop my employment - I also worked full-time but I wouldn't have been able to manage part-time!

    Things will get better though - and some days will be more improved than others. Just take it easy! <img src="images/smilies/smile.gif" border=0 />


    --
    Si

    Believe.

  3. #3
    Junior Member
    Join Date
    Feb 2012
    Posts
    5

    I have had it for four months as well so far. I have found that a radical change in diet and plenty of rest has helped me return to a normalish life fairly quickly. I have cut out all junk food, alchohol, processed foods and go for organic or fresh. I also takea range of supplements inculding vitamin D and Cod fish oil for Omega 3. This can be quite expensive but if you can afford it it makes an enormous difference to your energy levels. I am not even close to being recoverd and still suffer from the out of body feeling regularly but I am now managing to work at least.



  4. #4
    rm1
    rm1 is offline
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    Jan 2012
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    80

    there are great variations I have had it 16 months some have it many years. Age at onset and severity of onset and ongoing symptoms plus early diagnosis are the factors in assessing likely duration but this is a marathon not a sprint.



  5. #5
    Member
    Join Date
    Nov 2010
    Posts
    68

    hi sj..sorry to hear you are having a difficult time..personally i didnt/dont have neuro symptoms which u describe as mine were/are physical but a gud friend of mine had exact same symptoms as u and she was back to work part time within a year.3 years on and shes fully recovered. another girl i know fully recoverd aftr 2 years.as someone posted...there are many variations...everyone is different but in general people start t feel bettr i wud say aftr a year nd can take anothr year r 2 to 3 to fully recover.interestingly i was speaking to a friend of mine who is a psychiatrist yestrrday and she has worked with cf patients nd she has found that positive optimistic people hav bettr outcomes.easier said than done as we all know!!!! but u will get better as time passes.



  6. #6
    No2
    No2 is offline
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    Join Date
    Jul 2011
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    130

    I am the most optimistic SOB in this dang joint & I ain't gettin' no better! Been nar 3 yrs! <img src="images/smilies/wink.gif" border=0 />



  7. #7
    Member
    Join Date
    Nov 2010
    Posts
    68

    ooh! i see that our mystery 'guest' strikes again. for those not familiar with 'guest'.he/she is typicaly known by random posts such as above which make no sense.its designed to make you feel annoyed when u read the post as u try to figure out what he/she is trying t say.i know..i know..i shudnt let it bother me so like most of u i ll just ignore the ramblings frm now on...



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