Post Viral Fatigue Chat & Forum

My recovery story from Post Viral Fatigue / Myalgic Encephalomyelitis / Chronic Fatigue Syndrome / ME / CFS

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  1. #1
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    Anyone else have horrible nausea? Its one of my worst symptoms, I hate it, anyone suffer from nausea initially then recover from it?

    Any replies would be appreciated, guess I'm just looking for some reassurance/help!

    Thanks guys

    Tally x



  2. #2
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    Thank you

    I really do hate it, it has lifted before, but then I can feel almost normal for a few days, longest has been a week only to come crashing back down again. I almost feel like I'm waiting for my life to begin again. All my energy goes towards getting my degree, and just pottering round the house, I'm a far cry from the fit active happy person I used to be, I cant wait to get her back!

    x



  3. #3
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    May 2010
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    Hey Tally - she is still there but just has to learn to adapt to a new way of living and pacing life to encourage recovery.

    I would sit and plan a whole week for yourself and see what you are ACTUALLY doing in that week as you will be surprised how much activity you are doing rather than resting ptoperly.

    Have you been diagnosed with PVFS/CFS/ME now and did you get any referal for CBT therapy or anything?

    Les <img src="images/smilies/biggrin.gif" border="0" alt="Big Grin" />



  4. #4
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    Its been 5 months so my doctor suspects it, all my bloods have come back normal. I have a appointment with gastroenterology at my hospital to rule out anything else but my doctor is doing it to reassure me I think, I have been waiting 4 months... After that I'm pretty certain the diagnosis will be PVF, which I'm ok with after all its better than the alternative which is an IBD (my doctor doesn't seem to think it is).

    I think what gets me the most is all my planning which has now changed to, make it through uni, go back home to live with mum (I know really I'm lucky I can do so).

    But I know its only temporary (most of the time I remember that)

    x



  5. #5
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    Please ask your GP to refer you to the CFS/ME clinic to see a specialist for diagnosis and support <a href="http://​www.meassociation.org.uk/​?page_id=1111" target="_blank" rel="nofollow">http://​www.meassociation.org.uk/​?page_id=1111</a> you will find your local one if you copy that link then take to GP.

    I believe in young people the diagnosis time is 4 months as in the NICE Guidelines so Google it and mention that too as it's the GP's Bible - good he is thinking along those lines though.

    Also ask for a print out of your blood tests - I have set up a file at home and every time I have a blood test I get a print out and compare to last time as sometimes GP;s can miss things but usually the lab have highlighted an issue so don't panic lol

    Keep us updated and don't worry about being with your Mum - I didn't move out until I was 27 lol It meant I could save up and travel to Australia and then I went back 2 months later to live for one year - better opportunity than trying to find a flat to live in London - believ me!

    Les xx



  6. #6
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    and I grew up in Central London and now live in the West of London so I wouldn't want to be looking right now with what's on offer these days unless I had a REALLY good stash of money behind me! lol



  7. #7
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    Thanks, I guess your right, I think I'm just tired of feeling sick all the time, even when resting the symptoms are there, I think if it were just the fatigue I would cope okay, but what keeps me going is the thought of recovery. It seems to happen all the time to others, wish it would hurry up lol!

    I am much better than I was when I could barely get to the shower, I think I have progressed allot, but its always with ups and downs...
    x



  8. #8
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    Hi Tally,

    Yes Nausea was one of my main symptoms for sometime so I started to drink Ginger beer, eat Ginger Biscuits or bake something with Ginger in - I also bought Lemon & Ginger Tea bags and just sipped one first thing in the morning or when it got bad. Now I get it as a general symptom of when I have overdone things so it DOES lift.

    Eating little and often is good too - keep lots of fruit around (I also had tinned fruit but opened it and put into the fridge in a sealed container and picked!!

    Porridge is also good - I am scottish so we tend to only use salt on porridge which also helps with the nausea but not too much salt!!

    Les xx



  9. #9
    Tim
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    <b>Tallypop</b> wrote:
    <div class=quote>Thanks, I guess your right, I think I'm just tired of feeling sick all the time, even when resting the symptoms are there, I think if it were just the fatigue I would cope okay, but what keeps me going is the thought of recovery. It seems to happen all the time to others, wish it would hurry up lol!

    I am much better than I was when I could barely get to the shower, I think I have progressed allot, but its always with ups and downs...
    x</div>

    What kind of nausea? Is it digestive stomach related or an overall body nausea that you can't put your finger on? Nausea is also may main symptom.



  10. #10
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    I'm not sure, its varies in severity greatly, I supposed to be seeing gastro at some point soon, just to be certain its not an IBD as the symptoms are similar, but as my bloods are fine my doctor thinks its PVF and not an IBD, I'm missing 1 or 2 of the other main symptoms for an IBD, but I want to be sure. Also what makes me think its post viral is that the nausea subsides after allot of rest and eating doesn't aggravate it.

    I have had stomach symptoms since this all started, I think it came on gradually, then one say the nausea just really hit along with the fatigue, aches, headaches...

    Rest seems to be the only thing that helps, its good that it does subside <img src="images/smilies/smile.gif" border=0 />, but I would recommend seeing a gastroenterologist if you haven't already.

    x



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