I believe, both from the research i've done and my own experience that a combination
of factors are involved in triggering this illness. It almost definetely begins
with a viral infection of some kind which the immune system attacks. For most of
the population that would be the end of it, but for people subseptable to post viral
fatigue it doesn't stop there, the virus is eliminated but we are left with this
strage after illness for years to come.
I believe the following factors play a part, they certainly did in my case:
I believe a lot of what makes certain people prone to the condition is basically
not looking after yourself.
Alex
3/30/2010 12:49:28 PM
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I have been feeling unwell, on and off for around about 6 months, I have had numorous visits to the doctors, with blood test taken that have came back all clear. The symptoms I have are so similar to those described on here, still I am yet to be diagnosed with anything but anxiety. I sometimes get a metalic like taste in my mouth, I don't Bo if this is common with anyone else?
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jenny
3/7/2010 6:26:35 PM
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I got pvf after a nasty virus and have been struggling to recover ever since. My problem is finding the balance between activity and rest. My life is now limited to being at home as its easier to manage.
I have had this thing almost a year it took 6months before I was referred to a rheumatologist which was no help at all and see a physiotherapist to work on exercises at home.
Just been to see the doctor recently she seemed very unsympathetic it is almost the attitude you have had this long enough just get on with it.
I am wondering how I can go back to work when no two days are the same?!
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jay
12/21/2009 12:20:23 AM
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I have been diagnosed with post viral fatigue!! had it for 5/6 months now....Seen 2 top specialist in the field. I have recently been injected with magnesium sulphate and vitamin b12 and it was like having an injection of life!!! Apprently people with CFS / post viral fatigue....can have low levels of certain things in the body....1 example is magnesium sulphate!!!? i read a very intersting atricle from this one doctor (Dr Sarah Myhill)....its very interesting and explains the cause of CFS!! I know how everyone feels....its the worst illness i have ever had and im praying that it will one day go and never come back!!
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Pat
12/19/2009 3:38:38 PM
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I developed a bad cold last december and havent recovered from it all year. I got a chest problem which was viral in April then developed swine flu in October. This last 3 weeks I have had another cold that I cant shake off and now have a real feeling of lethargy, weakness, lightheadedness along with some stomach problems. I have had mild depression for over 3 years as well. All tests from gps have came back clear. It has really got me down, but after reading this site it looks like I might have an answer.
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Jason Shiers
12/18/2009 1:02:11 PM
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Merry Xmas all,have been back to the docs tody and have been sighned of for a further 2 weeks due to pvfs.
Have had this now for close on 5 weeks.
My works are loosing pataince with me know,and im stressing about the fact that i could have my employment terminated.
Does any one know anything about what rights i would have as an emplyoye,and having this illness.
Any feedback would be extremley grateful.
Thank You.
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Tim S
12/10/2009 6:18:29 PM
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It is very encouraging to see others with my kinds of problems. I had H1N1 / Swine Flu about five weeks ago. I've had post viral fatigue / chronic fatigue symptoms since. I also had been working very hard and exercising hard after a long day of work. I am a first year teacher who used to bike a hard 40 minutes a day to and from work.
I am still not back to work and have seen very slow improvement. I can only do about one and a half hours of light exercise / work before I "crash" for an hour or two. My "crashes" consist of me not having the energy to move and sometimes having so little energy I can't or do not want to even speak. In the early stages of my sickness, I found I was a lot more susceptible to crashing before meals (I do not have diabetes, and have had thyroid testing but nothing showed up). Some things that helped with the before meal crashes included keeping almonds in my pocket for when my sugar / energy levels were getting low, and having a higher protein diet (I normally eat a lot of carbs). I also had IBS (irratable bowel syndrome) for a few weeks before I got the PVF, this likely had something to do with my getting this sick as well.
Things I have done to rebuild my immune system / energy level that have helped (mostly through my naturopath): -lots of rest -dietary changes (no more sugar / caffeine / stimulants, higher fiber grains/ whole grain products, high protein) -vitamin B12 (sublingual works great) -lots of oranges / vitamin C -a good multi B complex vitamin (Thorne is an excellent brand, not too pricey either) -D3 -Astragalus extract
Things that may be helping:
-acidophilus (buy enteric coated, this is the only type that works to rebuild the flora / good bacteria in the intestine) -naturopathic vitamin injections (Myers shot) -ashwaganda / withania -acupuncture -greens plus -no more milk products -choline
Things that I have tried but don't seem to do much: -aerobic oxygen drops
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CB
11/13/2009 3:16:28 AM
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Was diagnosed w/ H1N1 last week. Now experiencing PVF. Did not know what the hell was wrong w/ me until doing research on the internet and found this site. 3 weeks into the Swine Flu and PVF. Can't work. I pass out within a few hours of awakening. I use to have so much energy. My days are short. I don't know what day or when I will pass/out/fall asleep. When driving my eyes wll close by themselves. I want my energy and job back. please help.
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Elizabeth
11/7/2009 3:28:22 PM
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After taking Swine Flun in June 2009 I was ooff work for 5 weeks, returning on a phased return for 2 weeks. I had to sleep for 3 or 4 hours every afternoon. I started taking on more work despite muscular pain and skeletal pain. After 2 weeks i developed flu symptoms again. Again I had time off work and upon returning to work - ran myself into the ground because I couldn't say 'no' to extra work. Again I developed flu symptoms and was off for 2 weeks. I now know I must limit my activity. I don't feel guilty anymore about taking time out to rest. No exercise by doctors order. I have been using concentrated omega oils called Vegepa - now this really has helped. REcently my GP advised me that my immune system has taken a kicking from Swine flu and possibly from the Tamiflu I was prescribed. Details of Vegepa can be obtained on the net. I'm not advertising for them but it's certainly worth a go. Also ensure your Gp checks out your thyroid reading. Good luck to you all
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mario
10/30/2009 3:17:13 PM
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hi
i have the fatigue for 1 year now, your web page was very helpfull
for me the cause was: daily maximum exercise (jiu-jitsu) + drinking proteine suplements, didn't eat too much to lose weight (competition regulations), working alot and so on
started after having 2 viral infections in a week time ( flu and a intestine virus)
all medical exams returned perfect, but very fatigued
now, i am having a very organised life with little exercise and enough nutrition, hoping to get better
thanks again
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Mandy
9/8/2009 6:20:25 PM
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Hi there, I am on week 6 and have been diagnosed with POst Viral Syndrome. Had blood test done that all came back clear. I can manage my job 5 hours a day but thats about it. I go some days where i just have the fatigue and other days where i have achy joints mainly hands and lower legs/feet. Fed up already of just that feeling of not feeling well. Thanks to people like yourself who take the time to sort out websites for support to us all is great and does help to know that im not on my own so Thankyou.
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terrymcg
9/5/2009 10:16:57 AM
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so reassuring to know others understand what the hell I'm talking about! Have suffered two bouts of PVF/post viral cough for more than 6 months each over last 4 years - still struggling with the latest one. definitely linked to an initial flu-like viral infection (following overwork/overexercise maybe) which went away but PVF remains. Just seems that you have to learn to live with it and it will pass - bit frustrating for someone like me who enjoys regular, vigourous exercise and now I strugle to climb the stairs sometimes! Best of luck to all of you and thanks for a useful website
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Kate
8/12/2009 10:56:45 PM
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Hi i caught cmv virus 3 mths ago and have not bn well since. I went to my gp tday and was told i have post viral fatg and they wont diagns M.E unlss i have bn ill 4 6mths +. Wot i dont understd is i thgt pvf & m.e are the same thing?
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SweetLana
7/27/2009 12:28:19 PM
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Absolutely agree. In my case - stress, lack of sleep, too much exercise (in a very tired condition after work), some alcohol intake (wines mainly), tonsillitis during travel. But yes, I agree, I was not looking after myself. When my body was telling me - rest! I was not listening...
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